https://cancergrace.org/ en https://cancergrace.org/forum/please-feel-free-post-comment-or-question <span property="dc:title" class="field field--name-title field--type-string field--label-hidden">Please feel free to post a comment or question! </span> <span class="field field--name-uid field--type-entity-reference field--label-above"><a href="https://cancergrace.org/users/dbrock" rel="sioc:has_creator" hreflang="en">dbrock</a> <div class="post-count"><b>Posts:</b>162</div> <div class="bio"> <p>Operations Director, GRACE</p> <p>&nbsp;</p> </div> <div class="picture"> <img src="https://cancergrace.org/sites/default/files/styles/thumbnail/public/pictures/denise%20bio%20in%20template.png?itok=6aS3EGUA"> </div></span> <span property="dc:date dc:created" content="2018-08-31T22:31:26+00:00" datatype="xsd:dateTime" class="field field--name-created field--type-created field--label-hidden"><time datetime="2018-08-31T15:31:26-07:00" class="datetime">Fri, 08/31/2018 - 15:31</time> </span> <div class="layout layout--onecol"> <div class="layout__region layout__region--content"> <div class="block block-layout-builder block-field-blocknodeforumcreated"> <span property="dc:date dc:created" content="2018-08-31T22:31:26+00:00" datatype="xsd:dateTime" class="field field--name-created field--type-created field--label-hidden"><time datetime="2018-08-31T15:31:26-07:00" class="datetime">Fri, 08/31/2018 - 15:31</time> </span> </div> <div class="block block-layout-builder block-field-blocknodeforumuid"> <span class="field field--name-uid field--type-entity-reference field--label-above"><a href="https://cancergrace.org/users/dbrock" hreflang="en">dbrock</a> <div class="post-count"><b>Posts:</b>162</div> <div class="bio"> <p>Operations Director, GRACE</p> <p>&nbsp;</p> </div> <div class="picture"> <img src="https://cancergrace.org/sites/default/files/styles/thumbnail/public/pictures/denise%20bio%20in%20template.png?itok=6aS3EGUA"> </div></span> </div> <div class="block block-layout-builder block-field-blocknodeforumbody"> <div property="content:encoded" class="field field--name-body field--type-text-with-summary field--label-hidden clearfix text-formatted field__item"><p>Welcome to the new GRACE site! Here we hope to provide a place for our community members that go beyond lung cancer.&nbsp; Our amazing faculty is building and we would like to share their knowledge with others, to provide a place for those dealing with other types of cancers.&nbsp; Share our forum with others, and please consider this a safe place to discuss and ask questions about living with cancer.&nbsp;&nbsp;</p> </div> <div class="clearfix text-formatted field field--name-signature field--type-text-long field--label-hidden field__item"> <h6>Operations Director for GRACE. Have worked with cancerGRACE.org since July 2009.&nbsp; Became involved as a caregiver to my best friend, and quickly came to see that GRACE is filling a need in the area of cancer education.&nbsp;</h6> </div> </div> <div class="block block-layout-builder block-field-blocknodeforumtaxonomy-forums"> <div class="field field--name-taxonomy-forums field--type-entity-reference field--label-above"> <div class="field__label">Forums</div> <div class="field__item"><a href="https://cancergrace.org/forums/headneck-cancer-member-updates-0" hreflang="en">Head/Neck Cancer Member Updates</a></div> </div> </div> <div class="block block-layout-builder block-extra-field-blocknodeforumflag-flagged-page"> <drupal-render-placeholder callback="flag.link_builder:build" arguments="0=node&amp;1=1741&amp;2=flagged_page&amp;3=rss" token="rjtwollTaDFxn1hYVLK22d1Ghcv11kLyFFCtltMrsI4"></drupal-render-placeholder> </div> </div> </div> <div class="layout layout--onecol"> <div class="layout__region layout__region--content"> <div class="block block-layout-builder block-field-blocknodeforumcomment-forum"> <section class="field field--name-comment-forum field--type-comment field--label-hidden comment-wrapper"> </section> </div> <div class="block block-layout-builder block-extra-field-blocknodeforumlinks"> </div> </div> </div> Fri, 31 Aug 2018 22:31:26 +0000 dbrock 1741 at https://cancergrace.org https://cancergrace.org/forum/please-feel-free-post-comment-or-question#comments https://cancergrace.org/post/understanding-recurrent-and-metastatic-hpv-positive-head-and-neck-cancer <span class="field field--name-title field--type-string field--label-hidden">Understanding Recurrent and Metastatic HPV-Positive Head and Neck Cancer</span> <span class="field field--name-uid field--type-entity-reference field--label-inline"><a href="https://cancergrace.org/users/alexandragbeneke" hreflang="en">AlexandraGBeneke</a></span> <span class="field field--name-created field--type-created field--label-above"><time datetime="2025-09-08T10:44:35-07:00" class="datetime">Mon, 09/08/2025 - 10:44</time> </span> <div class="layout layout--onecol"> <div class="layout__region layout__region--content"> <div class="block block-layout-builder block-extra-field-blocknodevideo-postflag-flagged-page"> <drupal-render-placeholder callback="flag.link_builder:build" arguments="0=node&amp;1=8009&amp;2=flagged_page&amp;3=rss" token="6Ygp-eXsCKfr38Z-Bb9jokLMp5M4xp9pIHgpHx2I4Qc"></drupal-render-placeholder> </div> <div class="block block-addtoany block-addtoany-block"> <span class="a2a_kit a2a_kit_size_32 addtoany_list" data-a2a-url="https://cancergrace.org/taxonomy/term/2252/feed" data-a2a-title="CancerGRACE"><a class="a2a_dd addtoany_share" href="https://www.addtoany.com/share#url=https%3A%2F%2Fcancergrace.org%2Ftaxonomy%2Fterm%2F2252%2Ffeed&amp;title=CancerGRACE"></a><a class="a2a_button_facebook"></a><a class="a2a_button_twitter"></a><a class="a2a_button_email"></a></span> </div> </div> </div> <div class="layout layout--twocol-section layout--twocol-section--25-75"> <div class="layout__region layout__region--first"> <div class="coral-bg coral-carat-bottom block-content--basic block-content--view-mode-full block block-layout-builder block-inline-blockbasic"> <div class="clearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item"><h2> Article and Video CATEGORIES </h2> </div> </div> <div class="views-element-container grey-bg block block-views block-views-blocktaxonomy-sidebar-block-1"> <h2>Cancer Journey</h2> <div><div class="view view-taxonomy-sidebar view-id-taxonomy_sidebar view-display-id-block_1 js-view-dom-id-0d19a0144345fe7ad0b1257bb43155cdb6db309356c876657fd2847fe1801f33"> <form class="ctools-jump-menu" action="https://cancergrace.org/" method="post" id="ctools-jump-menu" accept-charset="UTF-8"> <div class="view-content"> <h3> Search By </h3> <select class="ViewsJumpMenu js-viewsJumpMenu chosen-disable" title="-- Choose --" id="view-jumpmenutaxonomy-sidebar"> <option>-- Choose --</option> <optgroup label> <option></option> <option data-url="/taxonomy/term/18">Just Diagnosed </option> <option data-url="/taxonomy/term/19">In Treatment </option> <option data-url="/taxonomy/term/20">In Remission </option> <option data-url="/taxonomy/term/21">Survivorship </option> </optgroup> <optgroup label> <option></option> <option data-url="/taxonomy/term/2250">Lung Cancer </option> <option data-url="/taxonomy/term/2251">Blood Cancer </option> <option data-url="/taxonomy/term/2252">Head and Neck Cancer </option> <option data-url="/taxonomy/term/2253">Other </option> <option data-url="/taxonomy/term/2286">Breast Cancer </option> <option data-url="/taxonomy/term/2287">Melanoma </option> <option data-url="/taxonomy/term/2288">Bladder Cancer </option> </optgroup> <optgroup label> <option></option> <option data-url="/taxonomy/term/2">Basic Cancer Info </option> <option data-url="/taxonomy/term/3">Cancer Treatments/ Symptom Mgmt </option> <option data-url="/taxonomy/term/4">Coping with Cancer/ Social Work </option> <option data-url="/taxonomy/term/6">Glossary/ Abbreviations </option> <option data-url="/taxonomy/term/7">FAQs About Cancer </option> <option data-url="/taxonomy/term/28">GRACE News </option> <option data-url="/taxonomy/term/87">Clinical Trials </option> </optgroup> </select> </div> </form> <div class="view-footer"> <p> Search here for cancer terms and phrases within cancerGRACE.org, and find tons of great information available on the GRACE website. </p> </div> </div> </div> </div> </div> <div class="layout__region layout__region--second"> <div class="header-one block block-layout-builder block-field-blocknodevideo-posttitle"> <span class="field field--name-title field--type-string field--label-hidden">Understanding Recurrent and Metastatic HPV-Positive Head and Neck Cancer</span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postuid"> <span class="field field--name-uid field--type-entity-reference field--label-inline"><a href="https://cancergrace.org/users/alexandragbeneke" hreflang="en">AlexandraGBeneke</a></span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postcreated"> <span class="field field--name-created field--type-created field--label-above"><time datetime="2025-09-08T10:44:35-07:00" class="datetime">Mon, 09/08/2025 - 10:44</time> </span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-subtitle"> <div class="field field--name-field-subtitle field--type-string-long field--label-hidden field__item">In this series, Dr. Jared Weiss discusses topics in HPV related cancer, including prognosis of advanced disease, the standard of care, and the importance of the HPV vaccination.</div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-author"> <div class="field field--name-field-author field--type-entity-reference field--label-inline clearfix"> <div class="field__label">Author</div> <div class="field__item">GRACE Videos and Articles</div> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postbody"> <div class="clearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item"><h2>What is HPV-positive head and neck cancer?</h2> <p><br>HPV stands for human papillomavirus, a common virus that can cause certain cancers. When we talk about HPV-positive head and neck cancer, we're referring to cancers that developed because of this viral infection.</p> <p><br>In the head and neck region, HPV most commonly affects the oropharynx, which includes the tonsils, base of the tongue, and nearby tissues in the throat. This is different from other head and neck cancers that might be caused by tobacco use or alcohol consumption.</p> <p><br>What makes HPV-positive cancers special is that they behave very differently from cancers not caused by HPV. The good news is that HPV-positive cancers usually respond much better to treatment than their HPV-negative counterparts. People diagnosed with HPV-positive head and neck cancer also tend to live longer and have better outcomes overall compared to those with HPV-negative disease. This difference in behavior is so significant that doctors now consider HPV-positive and HPV-negative head and neck cancers to be essentially two different diseases that require different approaches to treatment.<br>&nbsp;</p> <h2>When cancer comes back or spreads</h2> <p><br>Even though HPV-positive head and neck cancer often responds well to initial treatment, it can sometimes return (recurrent disease) or spread to other parts of the body (metastatic disease).<br>Most people diagnosed with this type of cancer first receive curative treatment, which might include surgery, radiation therapy, chemotherapy, or a combination of these approaches. The goal of this initial treatment is to completely eliminate the cancer from the body.</p> <p><br>However, despite the generally favorable outlook for HPV-positive cancers, some patients will experience cancer recurrence months or years after their initial treatment. When this happens, the cancer might come back in the same area where it originally started, appear in nearby lymph nodes, or spread to distant organs like the lungs, liver, or bones.</p> <p><br>If the cancer does return locally or spread after initial treatment, your care team will need to adjust your treatment plan significantly. At this point, the focus shifts to one of two main approaches: either attempting another curative treatment if the recurrence is caught early and in a limited area, or transitioning to treatments aimed at controlling symptoms, slowing the disease's progression, and maintaining your quality of life for as long as possible.<br>&nbsp;</p> <h2>First step: Can it still be cured?</h2> <p>When cancer returns, your care team will first check whether there's still a chance for cure. This is one of the most important evaluations your doctors will perform, as it determines the entire approach to your future treatment.</p> <p><br>Surgery may be an option if the cancer has returned to a location that can be operated on safely. Your surgical team will carefully evaluate whether the recurrent tumor can be completely removed without causing unacceptable damage to vital structures or functions like speech and swallowing.<br>Another possibility is re-irradiation, which means giving radiation therapy again to the area where cancer has returned. Modern radiation techniques allow doctors to deliver precise doses of radiation while carefully limiting damage to healthy tissues that may have been treated before. This approach requires sophisticated planning to balance effectiveness against the risk of complications.</p> <p><br>For some patients, targeted local treatments might be appropriate, particularly if the cancer has spread to only a small number of spots. These treatments could include highly focused radiation techniques like stereotactic radiation or surgical removal of individual metastatic sites. This approach, sometimes called treating "oligometastatic" disease, aims to eliminate all visible cancer with localized treatments.</p> <p><br>If careful evaluation shows that these curative options aren't possible due to the location, extent, or number of cancer sites, then treatment shifts its focus. In these situations, the goal becomes controlling the cancer's growth, improving symptoms you may be experiencing, and maintaining your quality of life for as long as possible.</p> <h2><br><br>Current standard treatments when a cure isn't possible</h2> <p><strong>Immunotherapy</strong> has revolutionized how recurrent and metastatic head and neck cancer is treated, offering new hope for patients whose cancer cannot be cured with surgery or radiation alone.</p> <p><br>Immunotherapy works by helping your own immune system recognize and attack cancer cells more effectively. Think of it as removing the brakes that cancer uses to hide from your immune system, allowing your body's natural defenses to fight the disease. The most commonly used immunotherapy drug is <strong>pembrolizumab</strong>, which can be given either alone or in combination with chemotherapy, depending on specific characteristics of your tumor found through laboratory testing.</p> <p><br>Whether you receive immunotherapy alone or combined with chemotherapy often depends on the results of a test called PD-L1. PD-L1 is a "marker" or protein found on cancer cells that helps doctors predict how well immunotherapy might work for your particular cancer. If your tumor shows high levels of PD-L1, immunotherapy alone may be sufficient to control your disease effectively. However, if your tumor has lower PD-L1 levels, your oncologist will likely recommend combining immunotherapy with chemotherapy to maximize the treatment's effectiveness.</p> <p><br>Other treatment approaches are also available for patients who may not be candidates for immunotherapy or whose disease has progressed despite immunotherapy treatment. Chemotherapy plus cetuximab represents an older standard of care that is still used for some patients who cannot receive immunotherapy due to autoimmune conditions or other medical reasons.</p> <p><br><strong>Clinical trials</strong> offer access to cutting-edge treatments that may not yet be widely available. These research studies are testing promising new approaches, including therapeutic vaccines specifically designed to train the immune system to target HPV proteins found in your cancer cells. Researchers are also investigating new targeted drugs, including innovative "bispecific" antibodies that can attack cancer cells in multiple ways simultaneously, as well as novel combinations of immunotherapy with other therapies designed to improve treatment results and overcome resistance mechanisms.<br>&nbsp;</p> <h2>Looking to the future</h2> <p>Rates of HPV-related head and neck cancers are rising and may peak in the 2030s. This ongoing increase represents both a significant public health challenge and an area of intense medical focus.</p> <p><br>The good news is that prevention through HPV vaccination offers tremendous hope for reducing future cases. As more people receive HPV vaccines, particularly during adolescence before exposure to the virus, we expect to see significant reductions in HPV-related cancers over the coming decades. This means that many future cases of this disease could be prevented entirely, similar to how vaccination programs have reduced other preventable cancers.</p> <p><br>At the same time, the current rise in cases has intensified research efforts to develop treatments that are more effective, less toxic, and longer lasting than current options. Scientists and doctors are working to better understand what makes HPV-positive cancers unique so they can design therapies specifically tailored to this disease. This includes developing treatments that target the virus itself, creating more sophisticated immunotherapy approaches, and finding ways to maintain the excellent cure rates we see with initial treatment while reducing the harsh side effects that can impact quality of life.</p> <p><br>The research community is also focused on helping the growing number of patients who do experience recurrent or metastatic disease live longer, better lives. This includes not only developing new drugs and treatment combinations but also improving supportive care, managing treatment side effects more effectively, and addressing the unique needs of patients with HPV-positive cancer, who tend to be younger and may face decades of survivorship after treatment.<br>&nbsp;</p> <h3>Questions to ask your doctor</h3> <p>●&nbsp;&nbsp;&nbsp;&nbsp;Is my cancer HPV-positive?</p> <p>●&nbsp;&nbsp;&nbsp;&nbsp;Could my cancer still be cured?</p> <p>●&nbsp;&nbsp;&nbsp;&nbsp;What are my treatment options now?</p> <p>●&nbsp;&nbsp;&nbsp;&nbsp;Am I eligible for a clinical trial?</p> <p>●&nbsp;&nbsp;&nbsp;&nbsp;What are the side effects of each treatment, and how can they be managed?</p> <p>●&nbsp;&nbsp;&nbsp;&nbsp;How will treatment affect my daily life?<br>&nbsp;</p> <h2>Key takeaway</h2> <p>HPV-positive head and neck cancer is different from HPV-negative disease — and that’s often a good thing, because it generally responds better to treatment. Even if the cancer comes back or spreads, there are more treatment options today than ever before, including immunotherapy, targeted therapies, and clinical trials.</p> <p>Knowing your options and asking the right questions can help you and your care team make the best plan for you.</p> <hr> <p style="-webkit-text-stroke-width:0px;background-color:rgba(255, 255, 255, 0.5);color:rgb(75, 68, 64);font-family:proxima-nova, &quot;Proxima Nova&quot;, &quot;Trebuchet MS&quot;, &quot;Helvetica Neue&quot;, Arial, Helvetica, sans-serif;font-size:16px;font-style:normal;font-variant-caps:normal;font-variant-ligatures:normal;font-weight:400;letter-spacing:normal;line-height:1.5em;margin-bottom:0px;margin-top:0px;orphans:2;text-align:start;text-decoration-color:initial;text-decoration-style:initial;text-decoration-thickness:initial;text-indent:0px;text-transform:none;white-space:normal;widows:2;word-spacing:0px;"><em>The content of this article has been algorithmically generated by an AI model trained on a wide range of data and is based on a Grace's video transcript from our 2025 HPV Advances Program - <a href="https://www.youtube.com/playlist?list=PLWsyUmdjLXhG-0WQu_fdwbhehHJfLKumS">https://www.youtube.com/playlist?list=PLWsyUmdjLXhG-0WQu_fdwbhehHJfLKumS</a> &nbsp;Verified by Joseph Steward, Medical Writer.</em></p> <p style="-webkit-text-stroke-width:0px;background-color:rgba(255, 255, 255, 0.5);color:rgb(75, 68, 64);font-family:proxima-nova, &quot;Proxima Nova&quot;, &quot;Trebuchet MS&quot;, &quot;Helvetica Neue&quot;, Arial, Helvetica, sans-serif;font-size:16px;font-style:normal;font-variant-caps:normal;font-variant-ligatures:normal;font-weight:400;letter-spacing:normal;line-height:1.5em;margin-bottom:0px;margin-top:0px;orphans:2;text-align:start;text-decoration-color:initial;text-decoration-style:initial;text-decoration-thickness:initial;text-indent:0px;text-transform:none;white-space:normal;widows:2;word-spacing:0px;">&nbsp;</p> <p style="-webkit-text-stroke-width:0px;background-color:rgba(255, 255, 255, 0.5);color:rgb(75, 68, 64);font-family:proxima-nova, &quot;Proxima Nova&quot;, &quot;Trebuchet MS&quot;, &quot;Helvetica Neue&quot;, Arial, Helvetica, sans-serif;font-size:16px;font-style:normal;font-variant-caps:normal;font-variant-ligatures:normal;font-weight:400;letter-spacing:normal;line-height:1.5em;margin-bottom:0px;margin-top:0px;orphans:2;text-align:start;text-decoration-color:initial;text-decoration-style:initial;text-decoration-thickness:initial;text-indent:0px;text-transform:none;white-space:normal;widows:2;word-spacing:0px;"><em>Every effort has been made to ensure the quality and reliability of the content; however, limitations, inaccuracies, or biases may exist. The content should not be considered a substitute for professional advice, and we recommend seeking professional guidance and independently verifying the information before making decisions based on this content.</em></p> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-related-content-video"> <div class="field field--name-field-related-content-video field--type-entity-reference field--label-above"> <div class="field__label">Related Content</div> <div class="field__items"> <div class="field__item"><a href="https://cancergrace.org/head-and-neck-cancer" hreflang="und">Head and Neck Cancer</a></div> <div class="field__item"><a href="https://cancergrace.org/forum/hpv-vaccine-and-opdivo-1293503" hreflang="und">HPV vaccine and opdivo - 1293503</a></div> <div class="field__item"><a href="https://cancergrace.org/post/program-hpv-advances-2024" hreflang="und">Program: HPV Advances 2024</a></div> </div> </div> </div> <div class="block block-layout-builder 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views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/2024-2025-pea-program-videos-thank-you-exelixis-and-janssen-your-sponsorship" hreflang="en">2024-2025 PEA Program Videos-Thank You Exelixis and Janssen for Your Sponsorship</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> </div> </div> </div> </div> <div class="views-element-container mint-bg mint-block block block-views block-views-blockcommunity-foum-block-6"> <h2>Recent Comments</h2> <div><div class="view view-community-foum view-id-community_foum view-display-id-block_6 js-view-dom-id-70854c04dcbc34461514f8da6394adf0bb8a069ca58788b4a00ea7427bdb0ea2"> <header class="view-header"> JOIN THE CONVERSATION </header> <div class="view-content"> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forums/general-lungthoracic-cancer/can-lung-cancer-be-asymptomatic" hreflang="en">Can lung cancer be asymptomatic?</a></span></div><div class="views-field views-field-subject"><span class="field-content">Hello Natalieaster, Welcome…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/janinet-grace-community-outreach" typeof="Person" property="schema:name" datatype content="JanineT GRACE Community Outreach">JanineT GRACE …</span> on <time datetime="2025-09-22T14:30:46-07:00" class="datetime">Mon, 09/22/2025 - 14:30</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/another-question-about-tagrisso-not-working-and-alternatives" hreflang="en">another question about Tagrisso not working and alternatives</a></span></div><div class="views-field views-field-subject"><span class="field-content">The information you share is…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/libbierohan" typeof="Person" property="schema:name" datatype>LibbieRohan</span> on <time datetime="2025-09-21T20:55:52-07:00" class="datetime">Sun, 09/21/2025 - 20:55</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/pancoast-tumor-5" hreflang="und">Pancoast Tumor </a></span></div><div class="views-field views-field-subject"><span class="field-content">Hi Mel, I'm sorry for the…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/janinet-grace-community-outreach" typeof="Person" property="schema:name" datatype content="JanineT GRACE Community Outreach">JanineT GRACE …</span> on <time datetime="2025-08-28T11:26:14-07:00" class="datetime">Thu, 08/28/2025 - 11:26</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/pancoast-tumor-5" hreflang="und">Pancoast Tumor </a></span></div><div class="views-field views-field-subject"><span class="field-content">Hello.<br> I know this post is…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/mel" typeof="Person" property="schema:name" datatype>mel</span> on <time datetime="2025-08-27T08:20:20-07:00" class="datetime">Wed, 08/27/2025 - 08:20</time> </span></div></div> </div> </div> </div> </div> </div> </div> Mon, 08 Sep 2025 17:44:35 +0000 AlexandraGBeneke 8009 at https://cancergrace.org https://cancergrace.org/post/be-part-patient-perspectives-clinical-trials-storytelling-program-2025-26 <span class="field field--name-title field--type-string field--label-hidden">Be a Part of the Patient Perspectives: Clinical Trials Storytelling Program - 2025-26</span> <span class="field field--name-uid field--type-entity-reference field--label-inline"><a href="https://cancergrace.org/users/dbrock" hreflang="en">dbrock</a></span> <span class="field field--name-created field--type-created field--label-above"><time datetime="2025-08-21T12:03:37-07:00" class="datetime">Thu, 08/21/2025 - 12:03</time> </span> <div class="layout layout--onecol"> <div class="layout__region layout__region--content"> <div class="block block-layout-builder block-extra-field-blocknodevideo-postflag-flagged-page"> <drupal-render-placeholder callback="flag.link_builder:build" arguments="0=node&amp;1=8000&amp;2=flagged_page&amp;3=rss" token="8m4vIJaQsFBS9Bj2U7uTQUqNHT3_UYQQ0RS1yt7Queo"></drupal-render-placeholder> </div> <div class="block block-addtoany block-addtoany-block"> <span class="a2a_kit a2a_kit_size_32 addtoany_list" data-a2a-url="https://cancergrace.org/taxonomy/term/2252/feed" data-a2a-title="CancerGRACE"><a class="a2a_dd addtoany_share" href="https://www.addtoany.com/share#url=https%3A%2F%2Fcancergrace.org%2Ftaxonomy%2Fterm%2F2252%2Ffeed&amp;title=CancerGRACE"></a><a class="a2a_button_facebook"></a><a class="a2a_button_twitter"></a><a class="a2a_button_email"></a></span> </div> </div> </div> <div class="layout layout--twocol-section layout--twocol-section--25-75"> <div class="layout__region layout__region--first"> <div class="coral-bg coral-carat-bottom block-content--basic block-content--view-mode-full block block-layout-builder block-inline-blockbasic"> <div class="clearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item"><h2> Article and Video CATEGORIES </h2> </div> </div> <div class="views-element-container grey-bg block block-views block-views-blocktaxonomy-sidebar-block-1"> <h2>Cancer Journey</h2> <div><div class="view view-taxonomy-sidebar view-id-taxonomy_sidebar view-display-id-block_1 js-view-dom-id-819de68a507eba97d183eb131a30635e25067260079c10523c4818c3b82f6aa3"> <form class="ctools-jump-menu" action="https://cancergrace.org/" method="post" id="ctools-jump-menu" accept-charset="UTF-8"> <div class="view-content"> <h3> Search By </h3> <select class="ViewsJumpMenu js-viewsJumpMenu chosen-disable" title="-- Choose --" id="view-jumpmenutaxonomy-sidebar"> <option>-- Choose --</option> <optgroup label> <option></option> <option data-url="/taxonomy/term/18">Just Diagnosed </option> <option data-url="/taxonomy/term/19">In Treatment </option> <option data-url="/taxonomy/term/20">In Remission </option> <option data-url="/taxonomy/term/21">Survivorship </option> </optgroup> <optgroup label> <option></option> <option data-url="/taxonomy/term/2250">Lung Cancer </option> <option data-url="/taxonomy/term/2251">Blood Cancer </option> <option data-url="/taxonomy/term/2252">Head and Neck Cancer </option> <option data-url="/taxonomy/term/2253">Other </option> <option data-url="/taxonomy/term/2286">Breast Cancer </option> <option data-url="/taxonomy/term/2287">Melanoma </option> <option data-url="/taxonomy/term/2288">Bladder Cancer </option> </optgroup> <optgroup label> <option></option> <option data-url="/taxonomy/term/2">Basic Cancer Info </option> <option data-url="/taxonomy/term/3">Cancer Treatments/ Symptom Mgmt </option> <option data-url="/taxonomy/term/4">Coping with Cancer/ Social Work </option> <option data-url="/taxonomy/term/6">Glossary/ Abbreviations </option> <option data-url="/taxonomy/term/7">FAQs About Cancer </option> <option data-url="/taxonomy/term/28">GRACE News </option> <option data-url="/taxonomy/term/87">Clinical Trials </option> </optgroup> </select> </div> </form> <div class="view-footer"> <p> Search here for cancer terms and phrases within cancerGRACE.org, and find tons of great information available on the GRACE website. </p> </div> </div> </div> </div> </div> <div class="layout__region layout__region--second"> <div class="header-one block block-layout-builder block-field-blocknodevideo-posttitle"> <span class="field field--name-title field--type-string field--label-hidden">Be a Part of the Patient Perspectives: Clinical Trials Storytelling Program - 2025-26</span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postuid"> <span class="field field--name-uid field--type-entity-reference field--label-inline"><a href="https://cancergrace.org/users/dbrock" hreflang="en">dbrock</a></span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postcreated"> <span class="field field--name-created field--type-created field--label-above"><time datetime="2025-08-21T12:03:37-07:00" class="datetime">Thu, 08/21/2025 - 12:03</time> </span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-subtitle"> <div class="field field--name-field-subtitle field--type-string-long field--label-hidden field__item">Patient Perspectives: Clinical Trials Experiences - Storytelling Program - 2025-26</div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-author"> <div class="field field--name-field-author field--type-entity-reference field--label-inline clearfix"> <div class="field__label">Author</div> <div class="field__item">Denise Brock</div> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-transcript"> <div class="field field--name-field-transcript field--type-file field--label-hidden field__item"> <span class="file file--mime-application-pdf file--application-pdf"> <a href="https://cancergrace.org/sites/default/files/2025-26%20GRACE%20Patient%20Perspectives%20Clinical%20Trials%20Storytelling%20-%20Program%20Application.pdf" type="application/pdf" title="2025-26 GRACE Patient Perspectives Clinical Trials Storytelling - Program Application.pdf">Clinical Trials Storytelling Application - Downloadable Document</a></span> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-feature-media"> <div class="field field--name-field-feature-media field--type-entity-reference field--label-hidden field__item"><article class="media media--type-image media--view-mode-initial-size"> <div class="field field--name-field-media-image field--type-image field--label-visually_hidden"> <div class="field__label visually-hidden">Image</div> <div class="field__item"> <img loading="lazy" src="https://cancergrace.org/sites/default/files/2025-08/2025-26%20Clinical%20Trials%20Storytelling%20%281280%20%C3%97%20425%20px%29%20%281280%20x%20350%20px%29%20%281280%20x%20250%20px%29.png" width="1280" height="250" alt="2025-26 Clinical Trials Storytelling" typeof="foaf:Image"> </div> </div> </article> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postbody"> <div class="clearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item"><h5 class="text-align-center"><span class="te-pumpkin"><strong>Tell your story and help us help others!</strong></span></h5> <hr> <p class="text-align-center"><em><strong>GRACE Patient Perspectives:&nbsp;</strong></em> Clinical Trials Storytelling Program - 2025-26 - Overview</p> <p class="text-align-center">&nbsp;<a class="button" href="https://forms.gle/WZN1TeLxmdHyZ3wAA">Apply online here</a></p> <p><strong>The goal of this </strong><em><strong>Patient Perspectives</strong></em><strong> program is to give a voice to those who have experience in participating in a clinical trial for a cancer diagnosis.&nbsp; By telling your story, you can educate others on the process, discuss your difficulties, and share your accomplishments.&nbsp; Your voice helps to educate and advocate for others who are in or who may be considering a clinical trial.&nbsp; </strong><em><strong>This is a paid opportunity, and you will receive a stipend for your participation!</strong></em><br>&nbsp;</p> <p>Storytelling will take the form of written, video, and/or audio/podcast to reach the largest audience.&nbsp; GRACE staff will coach and support participants on digital outreach and advocacy.&nbsp;</p> <p>&nbsp;</p> <p>All people currently enrolled in, or with past enrollment in, a clinical trial for a cancer diagnosis are welcome and encouraged to apply. GRACE’s designated committee will review the nominees and select up to 3 applicants for participation in the 2025-26 program.</p> <p>&nbsp;</p> <p><em><strong>Who is GRACE?</strong></em></p> <p>&nbsp;</p> <p>The Global Resource for Advancing Cancer Education (GRACE, cancerGRACE.org) is a non-profit organization founded by leading Thoracic Oncologist, Dr. Howard (Jack) West, in 2007. &nbsp;GRACE’s mission is to provide expert-mediated information directly to people with a cancer diagnosis and their caregivers to empower them to become direct partners in their cancer treatment.&nbsp; We currently produce over 300 short videos each year, reaching our community in over 190 countries.&nbsp;</p> <hr> <p>&nbsp;</p> <p><em><strong>Benefits of Participation</strong></em></p> <p>&nbsp;</p> <p><strong>Applicants selected for this year’s program will work closely with GRACE staff to develop new educational content and learn new communication skills through the storytelling process.</strong><br>Participants will receive training on digitally distributed content, social media, and other platforms.&nbsp; Participants' work will be highlighted and shared by GRACE, our network of established leaders in the oncology community, and GRACE board members with an array of interests and connections.&nbsp; &nbsp;&nbsp;</p> <p>Participants will receive a stipend, and training in communication and media platforms.</p> <p>&nbsp;</p> <p><em><strong>Expectations</strong></em></p> <p>&nbsp;</p> <p>Participants will work with GRACE to develop program formats and production, and will present a proposal based on their experience in a clinical trial program. &nbsp;Participants will be expected to attend (via ZOOM) regular meetings throughout the program year to learn and to discuss their ideas. A minimum of three (3) media productions per participant will be expected by the end of the program.&nbsp;&nbsp;<br>&nbsp;</p> <p><em><strong>Ideal Candidate</strong></em></p> <p>&nbsp;</p> <p><strong>People who are navigating a cancer diagnosis, who are currently or have been involved in a clinical trial, and who have a passion for helping others and telling their stories are ideal for this program. &nbsp;</strong></p> <p>&nbsp;</p> <p>Applicants should have a particular interest and passion for communications, sharing experiences, storytelling, and patient education.&nbsp; People looking for a way to give back to the cancer community, who exhibit strong written and oral communication skills coupled with a passion for sharing experiences to educate and advocate, will thrive in this program. &nbsp; GRACE will guide them through boosting their voice to advocate for themselves and others in the cancer community.&nbsp; &nbsp; &nbsp;</p> <p>&nbsp;</p> <p>&nbsp;2025 is our fifth year for this program, and we are excited to continue to generate a platform for patient advocacy and sharing patient education in the area of clinical trials.&nbsp;&nbsp;<br>&nbsp;</p> <p><strong>The application due date is October 5, 2025. Applicants will be contacted by October 25, 2025, with information regarding acceptance and the next steps.</strong></p> <p><br><a class="button" href="https://forms.gle/WZN1TeLxmdHyZ3wAA">To apply online, please click here,</a> OR download the above-attached PDF form and email it to <a href="mailto:dbrock@cancerGRACE.org">dbrock@cancerGRACE.org</a>.</p> <hr> <p><br>Any questions, please contact Denise Brock at <a href="mailto:dbrock@cancergrace.org">dbrock@cancergrace.org</a> or 888-501-1025 x2.<br>&nbsp;</p> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-related-content-video"> <div class="field field--name-field-related-content-video field--type-entity-reference field--label-above"> <div class="field__label">Related Content</div> <div class="field__items"> <div class="field__item"><a href="https://cancergrace.org/2021-patient-perspectives-clinical-trials-experiences-through-storytelling" hreflang="und">2021 Patient Perspectives: Clinical Trials Experiences Through Storytelling</a></div> <div class="field__item"><a href="https://cancergrace.org/post/patient-perspectives-clinical-trials-experiences-through-storytelling" hreflang="und">Patient Perspectives: Clinical Trials Experiences Through Storytelling</a></div> <div class="field__item"><a href="https://cancergrace.org/post/patient-perspectives-clinical-trials-experiences-through-storytelling-participants" hreflang="und">Patient Perspectives - Clinical Trials Experiences through Storytelling Participants</a></div> <div class="field__item"><a href="https://cancergrace.org/post/patient-perspective-clinical-trials-experiences-through-storytelling-program" hreflang="en">Patient Perspective - Clinical Trials Experiences Through Storytelling Program</a></div> <div class="field__item"><a href="https://cancergrace.org/post/2023-patient-perspective-clinical-trials-experiences-through-storytelling" hreflang="en">2023 Patient Perspective - Clinical Trials Experiences Through Storytelling</a></div> <div class="field__item"><a href="https://cancergrace.org/post/applications-are-now-closed-be-part-patient-perspectives-clinical-trials-storytelling-program" hreflang="en">Applications are now closed!... Be a Part of the Patient Perspectives: Clinical Trials Storytelling Program - 2024-25</a></div> </div> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-video-language"> <div class="field field--name-field-video-language field--type-entity-reference field--label-above"> <div class="field__label">Video Language</div> <div class="field__item"><a href="https://cancergrace.org/language/english" hreflang="en">English</a></div> </div> </div> <div class="bordered-block forums-link block-content--basic block-content--view-mode-full block block-block-content block-block-content90c7182c-a83f-46bf-a427-02b33cfd3b47"> <div class="clearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item"><p>Please feel free to offer comments and raise questions in our<br> discussion forums.</p> <p>&nbsp;<span class="bolded"><img alt data-entity-type data-entity-uuid src="https://cancergrace.org/themes/freelock_neptune/images/cg/blurb.png" style="width: 37px; height: 31px;"><a href="../forums">Join The conversation</a></span></p> </div> </div> </div> </div> <div class="layout layout--twocol-section layout--twocol-section--67-33"> <div class="layout__region layout__region--first"> </div> <div class="layout__region layout__region--second"> <div class="views-element-container block block-views block-views-blockcommunity-foum-block-4"> <h2>Online Community</h2> <div><div class="view view-community-foum view-id-community_foum view-display-id-block_4 js-view-dom-id-37839f4144edcb72cd5ccd073b8ae2d9cff4bd1f236eacdad873e5f038b34686"> <div class="view-content"> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forums/general-lungthoracic-cancer/can-lung-cancer-be-asymptomatic" hreflang="en">Can lung cancer be asymptomatic?</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"> <p>Hello Natalieaster, Welcome to Grace. &nbsp;I hope your stay with us is short, but we are always here to answer, listen and share. &nbsp;</p><p>Since your doctor didn't seem too worried...</p> </div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/tell-your-story-clinical-trials" hreflang="en">Tell Your Story-Clinical Trials</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/2025-blood-cancers-onctalk-oct-25-1030-am-pdt" hreflang="en">2025 Blood Cancers OncTalk, Oct 25 10:30 AM (PDT)</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/foro-en-espanol-sobre-terapias-dirigidas-para-el-cancer-de-pulmon" hreflang="en"> Foro en Español Sobre Terapias Dirigidas para el Cáncer de Pulmón </a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/2025-hpv-advances-patient-education-program-sponsored-merck" hreflang="en">2025 HPV Advances Patient Education Program-Sponsored by Merck</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/august-9-2025-foro-de-pacientes-sobre-terapias-dirigidas-en-cancer-de-pulmon-2025-webinar-en" hreflang="en">August 9, 2025, Foro de Pacientes sobre Terapias Dirigidas en Cáncer de Pulmón 2025 (Webinar en Vivo)</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/2024-2025-pea-program-videos-thank-you-exelixis-and-janssen-your-sponsorship" hreflang="en">2024-2025 PEA Program Videos-Thank You Exelixis and Janssen for Your Sponsorship</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> </div> </div> </div> </div> <div class="views-element-container mint-bg mint-block block block-views block-views-blockcommunity-foum-block-6"> <h2>Recent Comments</h2> <div><div class="view view-community-foum view-id-community_foum view-display-id-block_6 js-view-dom-id-2abdb9be80febe5864e09d3f6e5c045f854c006bd69ce065e06c31e1fd8731b3"> <header class="view-header"> JOIN THE CONVERSATION </header> <div class="view-content"> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forums/general-lungthoracic-cancer/can-lung-cancer-be-asymptomatic" hreflang="en">Can lung cancer be asymptomatic?</a></span></div><div class="views-field views-field-subject"><span class="field-content">Hello Natalieaster, Welcome…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/janinet-grace-community-outreach" typeof="Person" property="schema:name" datatype content="JanineT GRACE Community Outreach">JanineT GRACE …</span> on <time datetime="2025-09-22T14:30:46-07:00" class="datetime">Mon, 09/22/2025 - 14:30</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/another-question-about-tagrisso-not-working-and-alternatives" hreflang="en">another question about Tagrisso not working and alternatives</a></span></div><div class="views-field views-field-subject"><span class="field-content">The information you share is…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/libbierohan" typeof="Person" property="schema:name" datatype>LibbieRohan</span> on <time datetime="2025-09-21T20:55:52-07:00" class="datetime">Sun, 09/21/2025 - 20:55</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/pancoast-tumor-5" hreflang="und">Pancoast Tumor </a></span></div><div class="views-field views-field-subject"><span class="field-content">Hi Mel, I'm sorry for the…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/janinet-grace-community-outreach" typeof="Person" property="schema:name" datatype content="JanineT GRACE Community Outreach">JanineT GRACE …</span> on <time datetime="2025-08-28T11:26:14-07:00" class="datetime">Thu, 08/28/2025 - 11:26</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/pancoast-tumor-5" hreflang="und">Pancoast Tumor </a></span></div><div class="views-field views-field-subject"><span class="field-content">Hello.<br> I know this post is…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/mel" typeof="Person" property="schema:name" datatype>mel</span> on <time datetime="2025-08-27T08:20:20-07:00" class="datetime">Wed, 08/27/2025 - 08:20</time> </span></div></div> </div> </div> </div> </div> </div> </div> Thu, 21 Aug 2025 19:03:37 +0000 dbrock 8000 at https://cancergrace.org https://cancergrace.org/post/2025-head-and-neck-advances <span class="field field--name-title field--type-string field--label-hidden">2025 Head and Neck Advances </span> <span class="field field--name-uid field--type-entity-reference field--label-inline"><a href="https://cancergrace.org/users/alexandragbeneke" hreflang="en">AlexandraGBeneke</a></span> <span class="field field--name-created field--type-created field--label-above"><time datetime="2025-06-17T16:29:24-07:00" class="datetime">Tue, 06/17/2025 - 16:29</time> </span> <div class="layout layout--onecol"> <div class="layout__region layout__region--content"> <div class="block block-layout-builder block-extra-field-blocknodevideo-postflag-flagged-page"> <drupal-render-placeholder callback="flag.link_builder:build" arguments="0=node&amp;1=7953&amp;2=flagged_page&amp;3=rss" token="wrIE9e3Vs_4mNGzVxxv5dqvjF1ScBPxz2r7rHi4WZGg"></drupal-render-placeholder> </div> <div class="block block-addtoany block-addtoany-block"> <span 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</div> </div> </div> </div> <div class="layout__region layout__region--second"> <div class="header-one block block-layout-builder block-field-blocknodevideo-posttitle"> <span class="field field--name-title field--type-string field--label-hidden">2025 Head and Neck Advances </span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postuid"> <span class="field field--name-uid field--type-entity-reference field--label-inline"><a href="https://cancergrace.org/users/alexandragbeneke" hreflang="en">AlexandraGBeneke</a></span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postcreated"> <span class="field field--name-created field--type-created field--label-above"><time datetime="2025-06-17T16:29:24-07:00" class="datetime">Tue, 06/17/2025 - 16:29</time> </span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-subtitle"> <div class="field field--name-field-subtitle field--type-string-long field--label-hidden field__item">A panel of physicians discuss emerging information regarding the treatment of head and neck cancers.</div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-author"> <div class="field field--name-field-author field--type-entity-reference field--label-inline clearfix"> <div class="field__label">Author</div> <div class="field__item">GRACE Videos and Articles</div> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-feature-media"> <div class="field field--name-field-feature-media field--type-entity-reference field--label-hidden field__item"><article class="media media--type-image media--view-mode-initial-size"> <div class="field field--name-field-media-image field--type-image field--label-visually_hidden"> <div class="field__label visually-hidden">Image</div> <div class="field__item"> <img loading="lazy" src="https://cancergrace.org/sites/default/files/2025-06/Leading%20Developments%20and%20Current%20Questions%20in%20Head%20and%20Neck%20Cancer%20Panel%20Discussion%20series%20title%20slide%202025.jpg" width="1920" height="1080" alt="Head and Neck cancer 2025" typeof="foaf:Image"> </div> </div> </article> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-video"> <div class="field field--name-field-video field--type-entity-reference field--label-hidden field__items"> <div class="field__item"><article class="media media--type-remote-video media--view-mode-default"> <div class="field field--name-field-media-oembed-video field--type-string field--label-hidden field__item"><iframe src="https://cancergrace.org/media/oembed?url=https%3A//youtu.be/bU0lRe3PxcI&amp;max_width=715&amp;max_height=315&amp;hash=BDnWPHVfZrEqTZqFEynMW-e-rBD_HCPwNN7frqyriIE" width="560" height="315" class="media-oembed-content" loading="eager" title="Current Standard of Care for Patients Who Need Surgery 2025 Head and Neck Advances"></iframe> </div> </article> </div> <div class="field__item"><article class="media media--type-remote-video media--view-mode-default"> <div class="field field--name-field-media-oembed-video field--type-string field--label-hidden field__item"><iframe src="https://cancergrace.org/media/oembed?url=https%3A//youtu.be/uFMF0FRfKYU&amp;max_width=715&amp;max_height=315&amp;hash=O2VMbSlLNLzSjPsiX7dFy6qyUOEn1WMcFL3_Vdo4bEQ" width="560" height="315" class="media-oembed-content" loading="eager" title="Keynote 689 Pembrolizumab for Locally Advanced Disease 2025 Head and Neck Advances"></iframe> </div> </article> </div> <div class="field__item"><article class="media media--type-remote-video media--view-mode-default"> <div class="field field--name-field-media-oembed-video field--type-string field--label-hidden field__item"><iframe src="https://cancergrace.org/media/oembed?url=https%3A//youtu.be/ga-VSioQxwo&amp;max_width=715&amp;max_height=315&amp;hash=fALsm-aUCYzNHUwGnv75apzbSH_Oin4OZ1pzS73lvcU" width="560" height="315" class="media-oembed-content" loading="eager" title="Radiation Therapy + Cetuximab for Intermediate Risk Disease 2025 Head and Neck Advances"></iframe> </div> </article> </div> <div class="field__item"><article class="media media--type-remote-video media--view-mode-default"> <div class="field field--name-field-media-oembed-video field--type-string field--label-hidden field__item"><iframe src="https://cancergrace.org/media/oembed?url=https%3A//youtu.be/FnJBXJxNeJc&amp;max_width=715&amp;max_height=315&amp;hash=vtD2181Etj7jFM86KsiGRtWXewCo1cXh3hvjMCgGGps" width="560" height="315" class="media-oembed-content" loading="eager" title="Treatment Strategies from a Surgical Perspective 2025 Head and Neck Advances"></iframe> </div> </article> </div> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postbody"> <div class="clearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item"><p><span style="-webkit-text-stroke-width:0px;background-color:rgb(250, 250, 250);color:rgb(34, 34, 34);display:inline !important;float:none;font-family:Inter, ui-sans-serif, system-ui, sans-serif, &quot;Apple Color Emoji&quot;, &quot;Segoe UI Emoji&quot;, &quot;Segoe UI Symbol&quot;, &quot;Noto Color Emoji&quot;;font-size:13px;font-style:normal;font-variant-caps:normal;font-variant-ligatures:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-decoration-color:initial;text-decoration-style:initial;text-decoration-thickness:initial;text-indent:0px;text-transform:none;white-space:normal;widows:2;word-spacing:0px;">The panel discusses the current standard of care for patients with head and neck cancer who need surgery, </span><span style="-webkit-text-stroke-width:0px;background-color:rgb(255, 255, 255);color:rgb(34, 34, 34);display:inline !important;float:none;font-family:Inter, ui-sans-serif, system-ui, sans-serif, &quot;Apple Color Emoji&quot;, &quot;Segoe UI Emoji&quot;, &quot;Segoe UI Symbol&quot;, &quot;Noto Color Emoji&quot;;font-size:13px;font-style:normal;font-variant-caps:normal;font-variant-ligatures:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-decoration-color:initial;text-decoration-style:initial;text-decoration-thickness:initial;text-indent:0px;text-transform:none;white-space:normal;widows:2;word-spacing:0px;">the findings of the Keynote 689 study, which showed improved EFS in patients with head and neck cancers treated with pembrolizumab, </span><span style="-webkit-text-stroke-width:0px;background-color:rgb(250, 250, 250);color:rgb(34, 34, 34);display:inline !important;float:none;font-family:Inter, ui-sans-serif, system-ui, sans-serif, &quot;Apple Color Emoji&quot;, &quot;Segoe UI Emoji&quot;, &quot;Segoe UI Symbol&quot;, &quot;Noto Color Emoji&quot;;font-size:13px;font-style:normal;font-variant-caps:normal;font-variant-ligatures:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-decoration-color:initial;text-decoration-style:initial;text-decoration-thickness:initial;text-indent:0px;text-transform:none;white-space:normal;widows:2;word-spacing:0px;">the RTOG 0920 study, and how it may affect their use of cetuximab in clinic, and </span><span style="-webkit-text-stroke-width:0px;background-color:rgb(255, 255, 255);color:rgb(34, 34, 34);display:inline !important;float:none;font-family:Inter, ui-sans-serif, system-ui, sans-serif, &quot;Apple Color Emoji&quot;, &quot;Segoe UI Emoji&quot;, &quot;Segoe UI Symbol&quot;, &quot;Noto Color Emoji&quot;;font-size:13px;font-style:normal;font-variant-caps:normal;font-variant-ligatures:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-decoration-color:initial;text-decoration-style:initial;text-decoration-thickness:initial;text-indent:0px;text-transform:none;white-space:normal;widows:2;word-spacing:0px;">how surgeons view the various treatment agents for head and neck cancer, and whether they prefer certain ones.</span></p> <p><span style="-webkit-text-stroke-width:0px;background-color:rgb(255, 255, 255);color:rgb(34, 34, 34);display:inline !important;float:none;font-family:Inter, ui-sans-serif, system-ui, sans-serif, &quot;Apple Color Emoji&quot;, &quot;Segoe UI Emoji&quot;, &quot;Segoe UI Symbol&quot;, &quot;Noto Color Emoji&quot;;font-size:13px;font-style:normal;font-variant-caps:normal;font-variant-ligatures:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-decoration-color:initial;text-decoration-style:initial;text-decoration-thickness:initial;text-indent:0px;text-transform:none;white-space:normal;widows:2;word-spacing:0px;">To watch the complete playlist </span><a href="https://www.youtube.com/playlist?list=PLWsyUmdjLXhFp44Ceomr6kuHn7HT5TCd1"><span style="-webkit-text-stroke-width:0px;background-color:rgb(255, 255, 255);color:rgb(34, 34, 34);display:inline !important;float:none;font-family:Inter, ui-sans-serif, system-ui, sans-serif, &quot;Apple Color Emoji&quot;, &quot;Segoe UI Emoji&quot;, &quot;Segoe UI Symbol&quot;, &quot;Noto Color Emoji&quot;;font-size:13px;font-style:normal;font-variant-caps:normal;font-variant-ligatures:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-decoration-color:initial;text-decoration-style:initial;text-decoration-thickness:initial;text-indent:0px;text-transform:none;white-space:normal;widows:2;word-spacing:0px;"><u>click here</u></span></a></p> <p>&nbsp;</p> <p><!--{C}%3C!%2D%2D%20x-tinymce%2Fhtml%20%2D%2D%3E--></p><p>&nbsp;</p> <p><!-- x-tinymce/html --></p><p>&nbsp;</p> <style type="text/css"><!--td {border: 1px solid #cccccc;}br {mso-data-placement:same-cell;}--> </style></div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-related-content-video"> <div class="field field--name-field-related-content-video field--type-entity-reference field--label-above"> <div class="field__label">Related Content</div> <div class="field__items"> <div class="field__item"><a href="https://cancergrace.org/head-and-neck-cancer" hreflang="und">Head and Neck Cancer</a></div> <div class="field__item"><a href="https://cancergrace.org/post/head-neck-cancers-frequently-asked-questions" hreflang="und">Head &amp; Neck Cancers - Frequently Asked Questions</a></div> <div class="field__item"><a href="https://cancergrace.org/post/asco-2018-roundtable-head-and-neck-cancer-advances-immunotherapy-head-and-neck-cancer" hreflang="und">ASCO 2018 Roundtable - Head and Neck Cancer - Advances in Immunotherapy in Head and Neck Cancer</a></div> </div> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-video-language"> <div class="field field--name-field-video-language field--type-entity-reference field--label-above"> <div class="field__label">Video Language</div> <div class="field__item"><a href="https://cancergrace.org/language/english" hreflang="en">English</a></div> </div> </div> <div class="bordered-block forums-link block-content--basic block-content--view-mode-full block 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js-view-dom-id-48a3aaa20eddb0b65bcd0616bc09ec9ced2e44a39d172dd390c9a4d88db7a9a5"> <div class="view-content"> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forums/general-lungthoracic-cancer/can-lung-cancer-be-asymptomatic" hreflang="en">Can lung cancer be asymptomatic?</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"> <p>Hello Natalieaster, Welcome to Grace. &nbsp;I hope your stay with us is short, but we are always here to answer, listen and share. &nbsp;</p><p>Since your doctor didn't seem too worried...</p> </div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/tell-your-story-clinical-trials" hreflang="en">Tell Your Story-Clinical Trials</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> <div 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Program-Sponsored by Merck</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/august-9-2025-foro-de-pacientes-sobre-terapias-dirigidas-en-cancer-de-pulmon-2025-webinar-en" hreflang="en">August 9, 2025, Foro de Pacientes sobre Terapias Dirigidas en Cáncer de Pulmón 2025 (Webinar en Vivo)</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/2024-2025-pea-program-videos-thank-you-exelixis-and-janssen-your-sponsorship" hreflang="en">2024-2025 PEA Program Videos-Thank You Exelixis and Janssen for Your Sponsorship</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> </div> </div> </div> </div> <div class="views-element-container mint-bg mint-block block block-views block-views-blockcommunity-foum-block-6"> <h2>Recent Comments</h2> <div><div class="view view-community-foum view-id-community_foum view-display-id-block_6 js-view-dom-id-77b9326d4e22b32715498c59864269b6f5022f2de1b05d2e5466252d79f357f5"> <header class="view-header"> JOIN THE CONVERSATION </header> <div class="view-content"> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forums/general-lungthoracic-cancer/can-lung-cancer-be-asymptomatic" hreflang="en">Can lung cancer be asymptomatic?</a></span></div><div class="views-field views-field-subject"><span class="field-content">Hello Natalieaster, Welcome…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/janinet-grace-community-outreach" typeof="Person" property="schema:name" datatype content="JanineT GRACE Community Outreach">JanineT GRACE …</span> on <time datetime="2025-09-22T14:30:46-07:00" class="datetime">Mon, 09/22/2025 - 14:30</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/another-question-about-tagrisso-not-working-and-alternatives" hreflang="en">another question about Tagrisso not working and alternatives</a></span></div><div class="views-field views-field-subject"><span class="field-content">The information you share is…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/libbierohan" typeof="Person" property="schema:name" datatype>LibbieRohan</span> on <time datetime="2025-09-21T20:55:52-07:00" class="datetime">Sun, 09/21/2025 - 20:55</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/pancoast-tumor-5" hreflang="und">Pancoast Tumor </a></span></div><div class="views-field views-field-subject"><span class="field-content">Hi Mel, I'm sorry for the…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/janinet-grace-community-outreach" typeof="Person" property="schema:name" datatype content="JanineT GRACE Community Outreach">JanineT GRACE …</span> on <time datetime="2025-08-28T11:26:14-07:00" class="datetime">Thu, 08/28/2025 - 11:26</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/pancoast-tumor-5" hreflang="und">Pancoast Tumor </a></span></div><div class="views-field views-field-subject"><span class="field-content">Hello.<br> I know this post is…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/mel" typeof="Person" property="schema:name" datatype>mel</span> on <time datetime="2025-08-27T08:20:20-07:00" class="datetime">Wed, 08/27/2025 - 08:20</time> </span></div></div> </div> </div> </div> </div> </div> </div> Tue, 17 Jun 2025 23:29:24 +0000 AlexandraGBeneke 7953 at https://cancergrace.org https://cancergrace.org/post/2025-head-and-neck-advances#comments https://cancergrace.org/post/applications-are-now-closed-be-part-patient-perspectives-clinical-trials-storytelling-program <span class="field field--name-title field--type-string field--label-hidden">Applications are now closed!... Be a Part of the Patient Perspectives: Clinical Trials Storytelling Program - 2024-25</span> <span class="field field--name-uid field--type-entity-reference field--label-inline"><a href="https://cancergrace.org/users/dbrock" hreflang="en">dbrock</a></span> <span class="field field--name-created field--type-created field--label-above"><time datetime="2024-09-04T12:58:52-07:00" class="datetime">Wed, 09/04/2024 - 12:58</time> </span> <div class="layout layout--onecol"> <div class="layout__region layout__region--content"> <div class="block block-layout-builder block-extra-field-blocknodevideo-postflag-flagged-page"> <drupal-render-placeholder callback="flag.link_builder:build" arguments="0=node&amp;1=7855&amp;2=flagged_page&amp;3=rss" token="I0mTUemdF2OXvZybsOzCAfK2QO31PPN5L-QtWnMQtCg"></drupal-render-placeholder> </div> <div class="block block-addtoany block-addtoany-block"> <span class="a2a_kit a2a_kit_size_32 addtoany_list" data-a2a-url="https://cancergrace.org/taxonomy/term/2252/feed" data-a2a-title="CancerGRACE"><a class="a2a_dd addtoany_share" href="https://www.addtoany.com/share#url=https%3A%2F%2Fcancergrace.org%2Ftaxonomy%2Fterm%2F2252%2Ffeed&amp;title=CancerGRACE"></a><a class="a2a_button_facebook"></a><a class="a2a_button_twitter"></a><a class="a2a_button_email"></a></span> </div> </div> </div> <div class="layout layout--twocol-section layout--twocol-section--25-75"> <div class="layout__region layout__region--first"> <div class="coral-bg coral-carat-bottom block-content--basic block-content--view-mode-full block block-layout-builder block-inline-blockbasic"> <div class="clearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item"><h2> Article and Video CATEGORIES </h2> </div> </div> <div class="views-element-container grey-bg block block-views block-views-blocktaxonomy-sidebar-block-1"> <h2>Cancer Journey</h2> <div><div class="view view-taxonomy-sidebar view-id-taxonomy_sidebar view-display-id-block_1 js-view-dom-id-553d41d504d1af045379e3252f1b31c2d52c54fec2c898fed9b0acceac3dbd36"> <form class="ctools-jump-menu" action="https://cancergrace.org/" method="post" id="ctools-jump-menu" accept-charset="UTF-8"> <div class="view-content"> <h3> Search By </h3> <select class="ViewsJumpMenu js-viewsJumpMenu chosen-disable" title="-- Choose --" id="view-jumpmenutaxonomy-sidebar"> <option>-- Choose --</option> <optgroup label> <option></option> <option data-url="/taxonomy/term/18">Just Diagnosed </option> <option data-url="/taxonomy/term/19">In Treatment </option> <option data-url="/taxonomy/term/20">In Remission </option> <option data-url="/taxonomy/term/21">Survivorship </option> </optgroup> <optgroup label> <option></option> <option data-url="/taxonomy/term/2250">Lung Cancer </option> <option data-url="/taxonomy/term/2251">Blood Cancer </option> <option data-url="/taxonomy/term/2252">Head and Neck Cancer </option> <option data-url="/taxonomy/term/2253">Other </option> <option data-url="/taxonomy/term/2286">Breast Cancer </option> <option data-url="/taxonomy/term/2287">Melanoma </option> <option data-url="/taxonomy/term/2288">Bladder Cancer </option> </optgroup> <optgroup label> <option></option> <option data-url="/taxonomy/term/2">Basic Cancer Info </option> <option data-url="/taxonomy/term/3">Cancer Treatments/ Symptom Mgmt </option> <option data-url="/taxonomy/term/4">Coping with Cancer/ Social Work </option> <option data-url="/taxonomy/term/6">Glossary/ Abbreviations </option> <option data-url="/taxonomy/term/7">FAQs About Cancer </option> <option data-url="/taxonomy/term/28">GRACE News </option> <option data-url="/taxonomy/term/87">Clinical Trials </option> </optgroup> </select> </div> </form> <div class="view-footer"> <p> Search here for cancer terms and phrases within cancerGRACE.org, and find tons of great information available on the GRACE website. </p> </div> </div> </div> </div> </div> <div class="layout__region layout__region--second"> <div class="header-one block block-layout-builder block-field-blocknodevideo-posttitle"> <span class="field field--name-title field--type-string field--label-hidden">Applications are now closed!... Be a Part of the Patient Perspectives: Clinical Trials Storytelling Program - 2024-25</span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postuid"> <span class="field field--name-uid field--type-entity-reference field--label-inline"><a href="https://cancergrace.org/users/dbrock" hreflang="en">dbrock</a></span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postcreated"> <span class="field field--name-created field--type-created field--label-above"><time datetime="2024-09-04T12:58:52-07:00" class="datetime">Wed, 09/04/2024 - 12:58</time> </span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-subtitle"> <div class="field field--name-field-subtitle field--type-string-long field--label-hidden field__item">Applications have closed for this program. Keep your eye on next year to be a part of this paid program - Patient Perspectives: Clinical Trials Experiences - Storytelling Program - 2024-25</div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-author"> <div class="field field--name-field-author field--type-entity-reference field--label-inline clearfix"> <div class="field__label">Author</div> <div class="field__item">Denise Brock</div> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-transcript"> <div class="field field--name-field-transcript field--type-file field--label-hidden field__item"> <span class="file file--mime-application-pdf file--application-pdf"> <a href="https://cancergrace.org/sites/default/files/2024-25%20GRACE%20Patient%20Perspectives_%20Clinical%20Trials%20Storytelling%20-%20Program%20Application.docx__0.pdf" type="application/pdf" title="2024-25 GRACE Patient Perspectives_ Clinical Trials Storytelling - Program Application.docx__0.pdf">Clinical Trials Storytelling Application - Downloadable Document</a></span> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-feature-media"> <div class="field field--name-field-feature-media field--type-entity-reference field--label-hidden field__item"><article class="media media--type-image media--view-mode-initial-size"> <div class="field field--name-field-media-image field--type-image field--label-visually_hidden"> <div class="field__label visually-hidden">Image</div> <div class="field__item"> <img loading="lazy" src="https://cancergrace.org/sites/default/files/2024-09/2024-25%20Patient%20Perspectives%20%281280%20%C3%97%20425%20px%29%20%281200%20x%20150%20px%29.png" width="1200" height="150" alt="2024-25 patient perspectives header" typeof="foaf:Image"> </div> </div> </article> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postbody"> <div class="clearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item"><h5 class="text-align-center"><strong><span class="te-pumpkin">Tell your story and help us help others!</span></strong></h5> <hr> <p class="text-align-center"><strong>The application process is now closed.&nbsp; Thank you for your interest!&nbsp;</strong></p> <p class="text-align-center">&nbsp;</p> <hr> <p class="text-align-center">&nbsp;</p> <p><b><i>GRACE Patient Perspectives: </i></b>&nbsp;Clinical Trials Storytelling Program - 2024-25 - Overview</p> <p>&nbsp;</p> <p><b>The goal of this <i>Patient Perspectives</i> program is to give a voice to those who have experience in participating in a clinical trial for a cancer diagnosis.&nbsp; By telling your story, you can educate others on the process, discuss your difficulties, and share your accomplishments.&nbsp; Your voice helps to educate and advocate for others who are in or who may be considering a clinical trial.&nbsp; <em>This is a paid opportunity and you will receive a stipend for your participation!</em></b><br> &nbsp;</p> <p>Storytelling will take the form of written, video, and/or audio/podcast to reach the largest audience.&nbsp; GRACE staff will coach and support participants on digital outreach and advocacy.&nbsp;</p> <p>&nbsp;</p> <p>All people currently enrolled in, or with past enrollment in, a clinical trial for a cancer diagnosis are welcome and encouraged to apply. GRACE’s designated committee will review the nominees and select up to 3 applicants for participation in the 2024-25 program.</p> <p>&nbsp;</p> <p><b><i>Who is GRACE?</i></b></p> <p>&nbsp;</p> <p>The Global Resource for Advancing Cancer Education (GRACE, cancerGRACE.org) is a non-profit organization founded by leading Thoracic Oncologist, Dr. Howard (Jack) West, in 2007. &nbsp;GRACE’s mission is to provide expert-mediated information directly to people with a cancer diagnosis and their caregivers to empower them to become direct partners in their cancer treatment.&nbsp; We currently produce over 300 short videos each year, reaching our community in over 190 countries.&nbsp;</p> <p>&nbsp;</p> <p><b><i>Benefits of Participation</i></b></p> <p><b><i>&nbsp;</i></b></p> <p><b>Applicants selected for this year’s program will work closely with GRACE staff to develop new educational content and learn new communication skills through the storytelling process.</b><br> Participants will receive training on digitally distributed content, social media, and other platforms.&nbsp; Participants' work will be highlighted and shared by GRACE, our network of established leaders in the oncology community, and GRACE board members with an array of interests and connections.&nbsp; &nbsp;&nbsp;</p> <p> Participants will receive a stipend, training in communication and media platforms and a tech ‘package’. &nbsp;</p> <p>&nbsp;</p> <p><b><i>Expectations</i></b></p> <p>&nbsp;</p> <p>Participants will work with GRACE to develop program formats and production and will present a proposal based on their experience in a clinical trial program. &nbsp;Participants will be expected to attend (via ZOOM) regular meetings throughout the program year to learn and to discuss their ideas. A minimum of three (3) media productions per participant will be expected by the end of the program.&nbsp;&nbsp;<br> &nbsp;</p> <p><b><i>Ideal Candidates</i></b></p> <p>&nbsp;</p> <p><b>People who are navigating a cancer diagnosis, who are currently or have been involved in a clinical trial, and who have a passion for helping others and telling their stories are ideal for this program. &nbsp;</b></p> <p>&nbsp;</p> <p>Applicants should have a particular interest and passion for communications, sharing experiences, storytelling, and patient education.&nbsp; People looking for a way to give back to the cancer community, who exhibit strong written and oral communication skills coupled with a passion for sharing experiences to educate and advocate will thrive in this program. &nbsp; GRACE will guide them through boosting their voice to advocate for themselves and others in the cancer community.&nbsp; &nbsp; &nbsp;</p> <p>&nbsp;</p> <p>2024 is our fourth year for this program, and we are excited to continue to generate a platform for patient advocacy and sharing patient education in the area of clinical trials.&nbsp;&nbsp;<br> &nbsp;</p> <p><b>The application due date has been extended to October 25, 2024 for consideration. Applicants will be contacted by November 8, 2024, with information regarding acceptance and the next steps.</b></p> <p> To apply online please <a class="button" href="https://forms.gle/3UcM6VR51EHtBPJ6A">click here</a> OR download the above attached pdf form and email it to <a href="mailto:dbrock@cancerGRACE.org">dbrock@cancerGRACE.org</a>.</p> <hr> <p> Any questions, please contact Denise Brock at <a href="mailto:dbrock@cancergrace.org">dbrock@cancergrace.org</a> or 888-501-1025 x2.<br> &nbsp;</p> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-related-content-video"> <div class="field field--name-field-related-content-video field--type-entity-reference field--label-above"> <div class="field__label">Related Content</div> <div class="field__items"> <div class="field__item"><a href="https://cancergrace.org/2021-patient-perspectives-clinical-trials-experiences-through-storytelling" hreflang="und">2021 Patient Perspectives: Clinical Trials Experiences Through Storytelling</a></div> <div class="field__item"><a href="https://cancergrace.org/post/patient-perspectives-clinical-trials-experiences-through-storytelling" hreflang="und">Patient Perspectives: Clinical Trials Experiences Through Storytelling</a></div> <div class="field__item"><a href="https://cancergrace.org/post/patient-perspectives-clinical-trials-experiences-through-storytelling-participants" hreflang="und">Patient Perspectives - Clinical Trials Experiences through Storytelling Participants</a></div> <div class="field__item"><a href="https://cancergrace.org/post/patient-perspective-clinical-trials-experiences-through-storytelling-program" hreflang="en">Patient Perspective - Clinical Trials Experiences Through Storytelling Program</a></div> <div class="field__item"><a href="https://cancergrace.org/post/2023-patient-perspective-clinical-trials-experiences-through-storytelling" hreflang="en">2023 Patient Perspective - Clinical Trials Experiences Through Storytelling</a></div> </div> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-video-language"> <div class="field field--name-field-video-language field--type-entity-reference field--label-above"> <div class="field__label">Video Language</div> <div class="field__item"><a href="https://cancergrace.org/language/english" hreflang="en">English</a></div> </div> </div> <div class="bordered-block forums-link block-content--basic block-content--view-mode-full block block-block-content block-block-content90c7182c-a83f-46bf-a427-02b33cfd3b47"> <div class="clearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item"><p>Please feel free to offer comments and raise questions in our<br> discussion forums.</p> <p>&nbsp;<span class="bolded"><img alt data-entity-type data-entity-uuid src="https://cancergrace.org/themes/freelock_neptune/images/cg/blurb.png" style="width: 37px; height: 31px;"><a href="../forums">Join The conversation</a></span></p> </div> </div> </div> </div> <div class="layout layout--twocol-section layout--twocol-section--67-33"> <div class="layout__region layout__region--first"> </div> <div class="layout__region layout__region--second"> <div class="views-element-container block block-views block-views-blockcommunity-foum-block-4"> <h2>Online Community</h2> <div><div class="view view-community-foum view-id-community_foum view-display-id-block_4 js-view-dom-id-b568e6a2cb7b97b5575752a818a04b3be8e390038a7402b003922534962d3330"> <div class="view-content"> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forums/general-lungthoracic-cancer/can-lung-cancer-be-asymptomatic" hreflang="en">Can lung cancer be asymptomatic?</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"> <p>Hello Natalieaster, Welcome to Grace. &nbsp;I hope your stay with us is short, but we are always here to answer, listen and share. &nbsp;</p><p>Since your doctor didn't seem too worried...</p> </div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/tell-your-story-clinical-trials" hreflang="en">Tell Your Story-Clinical Trials</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/2025-blood-cancers-onctalk-oct-25-1030-am-pdt" hreflang="en">2025 Blood Cancers OncTalk, Oct 25 10:30 AM (PDT)</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/foro-en-espanol-sobre-terapias-dirigidas-para-el-cancer-de-pulmon" hreflang="en"> Foro en Español Sobre Terapias Dirigidas para el Cáncer de Pulmón </a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/2025-hpv-advances-patient-education-program-sponsored-merck" hreflang="en">2025 HPV Advances Patient Education Program-Sponsored by Merck</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/august-9-2025-foro-de-pacientes-sobre-terapias-dirigidas-en-cancer-de-pulmon-2025-webinar-en" hreflang="en">August 9, 2025, Foro de Pacientes sobre Terapias Dirigidas en Cáncer de Pulmón 2025 (Webinar en Vivo)</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/2024-2025-pea-program-videos-thank-you-exelixis-and-janssen-your-sponsorship" hreflang="en">2024-2025 PEA Program Videos-Thank You Exelixis and Janssen for Your Sponsorship</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> </div> </div> </div> </div> <div class="views-element-container mint-bg mint-block block block-views block-views-blockcommunity-foum-block-6"> <h2>Recent Comments</h2> <div><div class="view view-community-foum view-id-community_foum view-display-id-block_6 js-view-dom-id-a76d91986651a5eca67651434d97743c7f82cf06f218a00a4244aa9d53ba7b30"> <header class="view-header"> JOIN THE CONVERSATION </header> <div class="view-content"> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forums/general-lungthoracic-cancer/can-lung-cancer-be-asymptomatic" hreflang="en">Can lung cancer be asymptomatic?</a></span></div><div class="views-field views-field-subject"><span class="field-content">Hello Natalieaster, Welcome…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/janinet-grace-community-outreach" typeof="Person" property="schema:name" datatype content="JanineT GRACE Community Outreach">JanineT GRACE …</span> on <time datetime="2025-09-22T14:30:46-07:00" class="datetime">Mon, 09/22/2025 - 14:30</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/another-question-about-tagrisso-not-working-and-alternatives" hreflang="en">another question about Tagrisso not working and alternatives</a></span></div><div class="views-field views-field-subject"><span class="field-content">The information you share is…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/libbierohan" typeof="Person" property="schema:name" datatype>LibbieRohan</span> on <time datetime="2025-09-21T20:55:52-07:00" class="datetime">Sun, 09/21/2025 - 20:55</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/pancoast-tumor-5" hreflang="und">Pancoast Tumor </a></span></div><div class="views-field views-field-subject"><span class="field-content">Hi Mel, I'm sorry for the…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/janinet-grace-community-outreach" typeof="Person" property="schema:name" datatype content="JanineT GRACE Community Outreach">JanineT GRACE …</span> on <time datetime="2025-08-28T11:26:14-07:00" class="datetime">Thu, 08/28/2025 - 11:26</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/pancoast-tumor-5" hreflang="und">Pancoast Tumor </a></span></div><div class="views-field views-field-subject"><span class="field-content">Hello.<br> I know this post is…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/mel" typeof="Person" property="schema:name" datatype>mel</span> on <time datetime="2025-08-27T08:20:20-07:00" class="datetime">Wed, 08/27/2025 - 08:20</time> </span></div></div> </div> </div> </div> </div> </div> </div> Wed, 04 Sep 2024 19:58:52 +0000 dbrock 7855 at https://cancergrace.org https://cancergrace.org/post/please-note-we-have-extended-application-period-apply-july-15-be-part-clinical-trials <span class="field field--name-title field--type-string field--label-hidden">Please note! We have extended the application period - apply before July 15 to be a part of the Clinical Trials Experiences Through Storytelling - Patient Perspectives 2023-24 Program</span> <span class="field field--name-uid field--type-entity-reference field--label-inline"><a href="https://cancergrace.org/users/dbrock" hreflang="en">dbrock</a></span> <span class="field field--name-created field--type-created field--label-above"><time datetime="2023-07-05T14:59:31-07:00" class="datetime">Wed, 07/05/2023 - 14:59</time> </span> <div class="layout layout--onecol"> <div class="layout__region layout__region--content"> <div class="block block-layout-builder block-extra-field-blocknodevideo-postflag-flagged-page"> <drupal-render-placeholder callback="flag.link_builder:build" arguments="0=node&amp;1=7671&amp;2=flagged_page&amp;3=rss" token="-tBHHuF5SZV2lCeADCqfPacirqjJn58dpO6JBt8xBWI"></drupal-render-placeholder> </div> <div class="block block-addtoany block-addtoany-block"> <span class="a2a_kit a2a_kit_size_32 addtoany_list" data-a2a-url="https://cancergrace.org/taxonomy/term/2252/feed" data-a2a-title="CancerGRACE"><a class="a2a_dd addtoany_share" href="https://www.addtoany.com/share#url=https%3A%2F%2Fcancergrace.org%2Ftaxonomy%2Fterm%2F2252%2Ffeed&amp;title=CancerGRACE"></a><a class="a2a_button_facebook"></a><a class="a2a_button_twitter"></a><a class="a2a_button_email"></a></span> </div> </div> </div> <div class="layout layout--twocol-section layout--twocol-section--25-75"> <div class="layout__region layout__region--first"> <div class="coral-bg coral-carat-bottom block-content--basic block-content--view-mode-full block block-layout-builder block-inline-blockbasic"> <div class="clearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item"><h2> Article and Video CATEGORIES </h2> </div> </div> <div class="views-element-container grey-bg block block-views block-views-blocktaxonomy-sidebar-block-1"> <h2>Cancer Journey</h2> <div><div class="view view-taxonomy-sidebar view-id-taxonomy_sidebar view-display-id-block_1 js-view-dom-id-78418d6c2474eecd15a65f4870e3d8c80be7ef1a6c0bb3602e7113f1d3c6fe87"> <form class="ctools-jump-menu" action="https://cancergrace.org/" method="post" id="ctools-jump-menu" accept-charset="UTF-8"> <div class="view-content"> <h3> Search By </h3> <select class="ViewsJumpMenu js-viewsJumpMenu chosen-disable" title="-- Choose --" id="view-jumpmenutaxonomy-sidebar"> <option>-- Choose --</option> <optgroup label> <option></option> <option data-url="/taxonomy/term/18">Just Diagnosed </option> <option data-url="/taxonomy/term/19">In Treatment </option> <option data-url="/taxonomy/term/20">In Remission </option> <option data-url="/taxonomy/term/21">Survivorship </option> </optgroup> <optgroup label> <option></option> <option data-url="/taxonomy/term/2250">Lung Cancer </option> <option data-url="/taxonomy/term/2251">Blood Cancer </option> <option data-url="/taxonomy/term/2252">Head and Neck Cancer </option> <option data-url="/taxonomy/term/2253">Other </option> <option data-url="/taxonomy/term/2286">Breast Cancer </option> <option data-url="/taxonomy/term/2287">Melanoma </option> <option data-url="/taxonomy/term/2288">Bladder Cancer </option> </optgroup> <optgroup label> <option></option> <option data-url="/taxonomy/term/2">Basic Cancer Info </option> <option data-url="/taxonomy/term/3">Cancer Treatments/ Symptom Mgmt </option> <option data-url="/taxonomy/term/4">Coping with Cancer/ Social Work </option> <option data-url="/taxonomy/term/6">Glossary/ Abbreviations </option> <option data-url="/taxonomy/term/7">FAQs About Cancer </option> <option data-url="/taxonomy/term/28">GRACE News </option> <option data-url="/taxonomy/term/87">Clinical Trials </option> </optgroup> </select> </div> </form> <div class="view-footer"> <p> Search here for cancer terms and phrases within cancerGRACE.org, and find tons of great information available on the GRACE website. </p> </div> </div> </div> </div> </div> <div class="layout__region layout__region--second"> <div class="header-one block block-layout-builder block-field-blocknodevideo-posttitle"> <span class="field field--name-title field--type-string field--label-hidden">Please note! We have extended the application period - apply before July 15 to be a part of the Clinical Trials Experiences Through Storytelling - Patient Perspectives 2023-24 Program</span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postuid"> <span class="field field--name-uid field--type-entity-reference field--label-inline"><a href="https://cancergrace.org/users/dbrock" hreflang="en">dbrock</a></span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postcreated"> <span class="field field--name-created field--type-created field--label-above"><time datetime="2023-07-05T14:59:31-07:00" class="datetime">Wed, 07/05/2023 - 14:59</time> </span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-subtitle"> <div class="field field--name-field-subtitle field--type-string-long field--label-hidden field__item">We have extended the application period for this program! Apply before July 15 to be considered for participation in this paid program - 2023-24 Patient Perspectives Program - Clinical Trials Experiences Through Storytelling</div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-author"> <div class="field field--name-field-author field--type-entity-reference field--label-inline clearfix"> <div class="field__label">Author</div> <div class="field__item">Denise Brock</div> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-transcript"> <div class="field field--name-field-transcript field--type-file field--label-hidden field__item"> <span class="file file--mime-application-pdf file--application-pdf"> <a href="https://cancergrace.org/sites/default/files/2023-24%20GRACE%20Patient%20Perspectives_%20Clinical%20Trials%20Experiences%20-%20Program%20Application%20update.pdf" type="application/pdf">2023-24 GRACE Patient Perspectives_ Clinical Trials Experiences - Program Application update.pdf</a></span> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-feature-media"> <div class="field field--name-field-feature-media field--type-entity-reference field--label-hidden field__item"><article class="media media--type-image media--view-mode-initial-size"> <div class="field field--name-field-media-image field--type-image field--label-visually_hidden"> <div class="field__label visually-hidden">Image</div> <div class="field__item"> <img loading="lazy" src="https://cancergrace.org/sites/default/files/2023-05/2023-24%20Patient%20Perspectives%20%281280%20%C3%97%20425%20px%29.png" width="1280" height="425" alt="Tell your story! Apply now for the Clinical Trials Experiences through Storytelling Program" typeof="foaf:Image"> </div> </div> </article> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postbody"> <div class="clearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item"><h5 class="text-align-center"><strong><span class="te-pumpkin">Please note!&nbsp; We have extended the application deadline! Apply by July 15, 2023 to be considered!</span></strong></h5> <h5 class="text-align-center"><strong><span class="te-pumpkin">We are excited to launch our third year of this program; tell your story and help us help others!</span></strong></h5> <hr> <p class="text-align-center"><a class="button" href="https://forms.gle/yydXwbBzHMydGNVC9"><strong>Apply Online Now for this paid opportunity to tell your story!</strong></a></p> <p class="text-align-center">&nbsp;</p> <hr> <p class="text-align-center">&nbsp;</p> <p><b><i>GRACE Patient Perspectives: Clinical Trials Experiences Storytelling Program Overview</i></b></p> <p>&nbsp;</p> <p><b>The goal of this <i>Patient Perspectives</i> program is to give a voice to those who have experience in participating in a clinical trial for a cancer diagnosis.&nbsp; By telling your story, you can educate others on the process, discuss your difficulties and share your accomplishments.&nbsp; Your voice helps to educate and advocate for others who are in or who may be considering a clinical trial.&nbsp; This is a paid opportunity and you will receive a stipend for your participation!</b><br> &nbsp;</p> <p>Storytelling will take the form of written, video and/or audio/podcast to reach the largest audience.&nbsp; GRACE staff will coach and support participants on digital outreach and advocacy.&nbsp;</p> <p>&nbsp;</p> <p>All people currently enrolled in, or with past enrollment in, a clinical trial for a cancer diagnosis are welcome and encouraged to apply. GRACE’s designated committee will review the nominees and select up to 3 applicants for participation in the 2023-24 program.</p> <p>&nbsp;</p> <p><b><i>Who is GRACE?</i></b></p> <p>&nbsp;</p> <p>The Global Resource for Advancing Cancer Education (GRACE, cancerGRACE.org) is a non-profit organization founded by leading Thoracic Oncologist, Dr. Howard (Jack) West, in 2007. &nbsp;GRACE’s mission is to provide expert-mediated information directly to people with a cancer diagnosis and their caregivers to empower them to become direct partners in their cancer treatment.&nbsp; We currently produce over 300 short videos each year, reaching our community in over 190 countries.&nbsp;</p> <p>&nbsp;</p> <p><b><i>Benefits of Participation</i></b></p> <p><b><i>&nbsp;</i></b></p> <p><b>Applicants selected for this year’s program will work closely with GRACE staff to develop new educational content and learn new communication skills through the storytelling process.</b><br> Participants will receive training on digitally distributed content, social media and other platforms.&nbsp; Participants work will be highlighted and shared by GRACE, our network of established leaders in the oncology community, and GRACE board members with an array of interests and connections.&nbsp; &nbsp;&nbsp;</p> <p> Participants will receive a stipend, training in communication and media platforms, and a tech ‘package’. &nbsp;</p> <p>&nbsp;</p> <p><b><i>Expectations</i></b></p> <p>&nbsp;</p> <p>Participants will work with GRACE to develop program formats and production and will present a proposal based on their experience in a clinical trial program. &nbsp;Participants will be expected to attend (via ZOOM) regular monthly meetings throughout the program year to learn and to discuss their ideas. A minimum of three (3) media productions per participant will be expected by the end of the program.&nbsp;&nbsp;<br> &nbsp;</p> <p><b><i>Ideal Candidates</i></b></p> <p>&nbsp;</p> <p><b>People who are navigating a cancer diagnosis, who are currently or have been involved in a clinical trial, and who have a passion for helping others and telling their stories are ideal for this program. &nbsp;</b></p> <p>&nbsp;</p> <p>Applicants should have a particular interest and passion for communications, sharing experiences, storytelling, and patient education.&nbsp; People looking for a way to give back to the cancer community, who exhibit strong written and oral communication skills coupled with a passion for sharing experiences in order to educate and advocate will thrive in this program. &nbsp; GRACE will guide them through boosting their voice to advocate for themselves and others in the cancer community.&nbsp; &nbsp; &nbsp;</p> <p>&nbsp;</p> <p>2023 is our third year for this program, and we are excited to continue to generate a platform for patient advocacy and sharing patient education in the area of clinical trials.&nbsp;&nbsp;<br> &nbsp;</p> <p><b>All application forms must be submitted by July 15, 2023 for consideration. Applicants will be contacted by August 15, 2023, with information regarding acceptance and the next steps.</b></p> <p> To apply online please <a class="button" href="https://forms.gle/EJgUXF4KiAEcunkP8">click here</a> OR download the above attached pdf form and email it to <a href="mailto:dbrock@cancerGRACE.org">dbrock@cancerGRACE.org</a>.</p> <hr> <p> Any questions, please contact Denise Brock at <a href="mailto:dbrock@cancergrace.org">dbrock@cancergrace.org</a> or 888-501-1025 x2.<br> &nbsp;</p> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-related-content-video"> <div class="field field--name-field-related-content-video field--type-entity-reference field--label-above"> <div class="field__label">Related Content</div> <div class="field__items"> <div class="field__item"><a href="https://cancergrace.org/2021-patient-perspectives-clinical-trials-experiences-through-storytelling" hreflang="und">2021 Patient Perspectives: Clinical Trials Experiences Through Storytelling</a></div> <div class="field__item"><a href="https://cancergrace.org/post/patient-perspectives-clinical-trials-experiences-through-storytelling" hreflang="und">Patient Perspectives: Clinical Trials Experiences Through Storytelling</a></div> <div class="field__item"><a href="https://cancergrace.org/post/patient-perspectives-clinical-trials-experiences-through-storytelling-participants" hreflang="und">Patient Perspectives - Clinical Trials Experiences through Storytelling Participants</a></div> <div class="field__item"><a href="https://cancergrace.org/post/patient-perspective-clinical-trials-experiences-through-storytelling-program" hreflang="en">Patient Perspective - Clinical Trials Experiences Through Storytelling Program</a></div> </div> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-video-language"> <div class="field field--name-field-video-language field--type-entity-reference field--label-above"> <div class="field__label">Video Language</div> <div class="field__item"><a href="https://cancergrace.org/language/english" hreflang="en">English</a></div> </div> </div> <div class="bordered-block forums-link block-content--basic block-content--view-mode-full block block-block-content block-block-content90c7182c-a83f-46bf-a427-02b33cfd3b47"> <div class="clearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item"><p>Please feel free to offer comments and raise questions in our<br> discussion forums.</p> <p>&nbsp;<span class="bolded"><img alt data-entity-type data-entity-uuid src="https://cancergrace.org/themes/freelock_neptune/images/cg/blurb.png" style="width: 37px; height: 31px;"><a href="../forums">Join The conversation</a></span></p> </div> </div> </div> </div> <div class="layout layout--twocol-section layout--twocol-section--67-33"> <div class="layout__region layout__region--first"> </div> <div class="layout__region layout__region--second"> <div class="views-element-container block block-views block-views-blockcommunity-foum-block-4"> <h2>Online Community</h2> <div><div class="view view-community-foum view-id-community_foum view-display-id-block_4 js-view-dom-id-c42e84955719aa2b9c2ce2e68bf024d4dec17e9d6987bb37a7bb99bbaff6be12"> <div class="view-content"> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forums/general-lungthoracic-cancer/can-lung-cancer-be-asymptomatic" hreflang="en">Can lung cancer be asymptomatic?</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"> <p>Hello Natalieaster, Welcome to Grace. &nbsp;I hope your stay with us is short, but we are always here to answer, listen and share. &nbsp;</p><p>Since your doctor didn't seem too worried...</p> </div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/tell-your-story-clinical-trials" hreflang="en">Tell Your Story-Clinical Trials</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/2025-blood-cancers-onctalk-oct-25-1030-am-pdt" hreflang="en">2025 Blood Cancers OncTalk, Oct 25 10:30 AM (PDT)</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/foro-en-espanol-sobre-terapias-dirigidas-para-el-cancer-de-pulmon" hreflang="en"> Foro en Español Sobre Terapias Dirigidas para el Cáncer de Pulmón </a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> <div 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href="https://cancergrace.org/forum/2024-2025-pea-program-videos-thank-you-exelixis-and-janssen-your-sponsorship" hreflang="en">2024-2025 PEA Program Videos-Thank You Exelixis and Janssen for Your Sponsorship</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> </div> </div> </div> </div> <div class="views-element-container mint-bg mint-block block block-views block-views-blockcommunity-foum-block-6"> <h2>Recent Comments</h2> <div><div class="view view-community-foum view-id-community_foum view-display-id-block_6 js-view-dom-id-2f39628fc5e1caba7b5ed82507b23b583bf6454cf5a26aa55a8b11bf7ad67759"> <header class="view-header"> JOIN THE CONVERSATION </header> <div class="view-content"> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forums/general-lungthoracic-cancer/can-lung-cancer-be-asymptomatic" hreflang="en">Can lung cancer be asymptomatic?</a></span></div><div class="views-field views-field-subject"><span class="field-content">Hello Natalieaster, Welcome…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/janinet-grace-community-outreach" typeof="Person" property="schema:name" datatype content="JanineT GRACE Community Outreach">JanineT GRACE …</span> on <time datetime="2025-09-22T14:30:46-07:00" class="datetime">Mon, 09/22/2025 - 14:30</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/another-question-about-tagrisso-not-working-and-alternatives" hreflang="en">another question about Tagrisso not working and alternatives</a></span></div><div class="views-field views-field-subject"><span class="field-content">The information you share is…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/libbierohan" typeof="Person" property="schema:name" datatype>LibbieRohan</span> on <time datetime="2025-09-21T20:55:52-07:00" class="datetime">Sun, 09/21/2025 - 20:55</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/pancoast-tumor-5" hreflang="und">Pancoast Tumor </a></span></div><div class="views-field views-field-subject"><span class="field-content">Hi Mel, I'm sorry for the…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/janinet-grace-community-outreach" typeof="Person" property="schema:name" datatype content="JanineT GRACE Community Outreach">JanineT GRACE …</span> on <time datetime="2025-08-28T11:26:14-07:00" class="datetime">Thu, 08/28/2025 - 11:26</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/pancoast-tumor-5" hreflang="und">Pancoast Tumor </a></span></div><div class="views-field views-field-subject"><span class="field-content">Hello.<br> I know this post is…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/mel" typeof="Person" property="schema:name" datatype>mel</span> on <time datetime="2025-08-27T08:20:20-07:00" class="datetime">Wed, 08/27/2025 - 08:20</time> </span></div></div> </div> </div> </div> </div> </div> </div> Wed, 05 Jul 2023 21:59:31 +0000 dbrock 7671 at https://cancergrace.org https://cancergrace.org/post/hpv-advances <span class="field field--name-title field--type-string field--label-hidden">HPV Advances </span> <span class="field field--name-uid field--type-entity-reference field--label-inline"><a href="https://cancergrace.org/users/alexandragbeneke" hreflang="en">AlexandraGBeneke</a></span> <span class="field field--name-created field--type-created field--label-above"><time datetime="2023-06-20T08:21:20-07:00" class="datetime">Tue, 06/20/2023 - 08:21</time> </span> <div class="layout layout--onecol"> <div class="layout__region layout__region--content"> <div class="block block-layout-builder block-extra-field-blocknodevideo-postflag-flagged-page"> <drupal-render-placeholder callback="flag.link_builder:build" arguments="0=node&amp;1=7657&amp;2=flagged_page&amp;3=rss" token="QwUUHrqIgskKC1GKtHoY2nxZfcQQFKDlM_K03gAdeN4"></drupal-render-placeholder> </div> <div class="block block-addtoany block-addtoany-block"> <span class="a2a_kit a2a_kit_size_32 addtoany_list" data-a2a-url="https://cancergrace.org/taxonomy/term/2252/feed" data-a2a-title="CancerGRACE"><a class="a2a_dd addtoany_share" href="https://www.addtoany.com/share#url=https%3A%2F%2Fcancergrace.org%2Ftaxonomy%2Fterm%2F2252%2Ffeed&amp;title=CancerGRACE"></a><a class="a2a_button_facebook"></a><a class="a2a_button_twitter"></a><a class="a2a_button_email"></a></span> </div> </div> </div> <div class="layout layout--twocol-section layout--twocol-section--25-75"> <div class="layout__region layout__region--first"> <div class="coral-bg coral-carat-bottom block-content--basic block-content--view-mode-full block block-layout-builder block-inline-blockbasic"> <div class="clearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item"><h2> Article and Video CATEGORIES </h2> </div> </div> <div class="views-element-container grey-bg block block-views block-views-blocktaxonomy-sidebar-block-1"> <h2>Cancer Journey</h2> <div><div class="view view-taxonomy-sidebar view-id-taxonomy_sidebar view-display-id-block_1 js-view-dom-id-eef5631e196d38709e88a09a0f9207737f9151f92bcb1fc81310745ee2d4bd9c"> <form class="ctools-jump-menu" action="https://cancergrace.org/" method="post" id="ctools-jump-menu" accept-charset="UTF-8"> <div class="view-content"> <h3> Search By </h3> <select class="ViewsJumpMenu js-viewsJumpMenu chosen-disable" title="-- Choose --" id="view-jumpmenutaxonomy-sidebar"> <option>-- Choose --</option> <optgroup label> <option></option> <option data-url="/taxonomy/term/18">Just Diagnosed </option> <option data-url="/taxonomy/term/19">In Treatment </option> <option data-url="/taxonomy/term/20">In Remission </option> <option data-url="/taxonomy/term/21">Survivorship </option> </optgroup> <optgroup label> <option></option> <option data-url="/taxonomy/term/2250">Lung Cancer </option> <option data-url="/taxonomy/term/2251">Blood Cancer </option> <option data-url="/taxonomy/term/2252">Head and Neck Cancer </option> <option data-url="/taxonomy/term/2253">Other </option> <option data-url="/taxonomy/term/2286">Breast Cancer </option> <option data-url="/taxonomy/term/2287">Melanoma </option> <option data-url="/taxonomy/term/2288">Bladder Cancer </option> </optgroup> <optgroup label> <option></option> <option data-url="/taxonomy/term/2">Basic Cancer Info </option> <option data-url="/taxonomy/term/3">Cancer Treatments/ Symptom Mgmt </option> <option data-url="/taxonomy/term/4">Coping with Cancer/ Social Work </option> <option data-url="/taxonomy/term/6">Glossary/ Abbreviations </option> <option data-url="/taxonomy/term/7">FAQs About Cancer </option> <option data-url="/taxonomy/term/28">GRACE News </option> <option data-url="/taxonomy/term/87">Clinical Trials </option> </optgroup> </select> </div> </form> <div class="view-footer"> <p> Search here for cancer terms and phrases within cancerGRACE.org, and find tons of great information available on the GRACE website. </p> </div> </div> </div> </div> </div> <div class="layout__region layout__region--second"> <div class="header-one block block-layout-builder block-field-blocknodevideo-posttitle"> <span class="field field--name-title field--type-string field--label-hidden">HPV Advances </span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postuid"> <span class="field field--name-uid field--type-entity-reference field--label-inline"><a href="https://cancergrace.org/users/alexandragbeneke" hreflang="en">AlexandraGBeneke</a></span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postcreated"> <span class="field field--name-created field--type-created field--label-above"><time datetime="2023-06-20T08:21:20-07:00" class="datetime">Tue, 06/20/2023 - 08:21</time> </span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-subtitle"> <div class="field field--name-field-subtitle field--type-string-long field--label-hidden field__item">Head and Neck Cancer Treatment Updates </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-author"> <div class="field field--name-field-author field--type-entity-reference field--label-inline clearfix"> <div class="field__label">Author</div> <div class="field__item">Jared Weiss, MD</div> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-feature-media"> <div class="field field--name-field-feature-media field--type-entity-reference field--label-hidden field__item"><article class="media media--type-image media--view-mode-initial-size"> <div class="field field--name-field-media-image field--type-image field--label-visually_hidden"> <div class="field__label visually-hidden">Image</div> <div class="field__item"> <img loading="lazy" src="https://cancergrace.org/sites/default/files/2023-06/Copy%20of%20Case%20Based%20Panel%20Discussion%20Lung%202022%20series%20title%20slide%20%281920%20%C3%97%20250%20px%29.png" width="1920" height="250" alt="HPV Advances " typeof="foaf:Image"> </div> </div> </article> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-video"> <div class="field field--name-field-video field--type-entity-reference field--label-hidden field__items"> <div class="field__item"><article class="media media--type-remote-video media--view-mode-default"> <div class="field field--name-field-media-oembed-video field--type-string field--label-hidden field__item"><iframe src="https://cancergrace.org/media/oembed?url=https%3A//youtu.be/uVP96m5pzxs&amp;max_width=715&amp;max_height=315&amp;hash=T5jZza5VzE2TGBH4xyZUBBwDT459o7QIcCf7NbCN48E" width="560" height="315" class="media-oembed-content" loading="eager" title="High PD-L1Head and Neck Cancer Treatment Options for Patients - HPV Advances"></iframe> </div> </article> </div> <div class="field__item"><article class="media media--type-remote-video media--view-mode-default"> <div class="field field--name-field-media-oembed-video field--type-string field--label-hidden field__item"><iframe src="https://cancergrace.org/media/oembed?url=https%3A//youtu.be/F7OD6kO9I3Q&amp;max_width=715&amp;max_height=315&amp;hash=sSIYNzhFV7HI9xSxjDKKpMnd0ctNsU0iE0LimxJf8zI" width="560" height="315" class="media-oembed-content" loading="eager" title="Low or Negative PD-L1 Head and Neck CancerTreatment Options for Patients - HPV Advances"></iframe> </div> </article> </div> <div class="field__item"><article class="media media--type-remote-video media--view-mode-default"> <div class="field field--name-field-media-oembed-video field--type-string field--label-hidden field__item"><iframe src="https://cancergrace.org/media/oembed?url=https%3A//youtu.be/cnGj5XJEAXM&amp;max_width=715&amp;max_height=315&amp;hash=8EzWCIjSU89xQPMLZ5MyMN65sPqQi3wDTz0d4HbdaCk" width="560" height="315" class="media-oembed-content" loading="eager" title="Emerging Treatment Options for Head and Neck Cancer - HPV Advances"></iframe> </div> </article> </div> <div class="field__item"><article class="media media--type-remote-video media--view-mode-default"> <div class="field field--name-field-media-oembed-video field--type-string field--label-hidden field__item"><iframe src="https://cancergrace.org/media/oembed?url=https%3A//youtu.be/7gwpG6woBX0&amp;max_width=715&amp;max_height=315&amp;hash=uO4M5P2Heu3f__XRKogVgc1QpOq6jtoonNiCplQKjSw" width="560" height="315" class="media-oembed-content" loading="eager" title="Safety and Efficacy of the HPV Vaccine - HPV Advances"></iframe> </div> </article> </div> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postbody"> <div class="clearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item"><p>Jill Meyer-Lippert, Dr. Jared Weiss, and Dr. Mary Cooley give an in-depth examination of HPV+ head and neck cancer, including vaccination, treatment options, and managing side effects.</p> <h4><span class="te-dark-moss">To watch the complete HPV Program series, visit the <a class="button" href="https://youtube.com/playlist?list=PLWsyUmdjLXhFYn-Ve_xVbdKHEht8oM6xs">full video playlist here</a></span>.</h4> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-related-content-video"> <div class="field field--name-field-related-content-video field--type-entity-reference field--label-above"> <div class="field__label">Related Content</div> <div class="field__items"> <div class="field__item"><a href="https://cancergrace.org/head-and-neck-cancer" hreflang="und">Head and Neck Cancer</a></div> <div class="field__item"><a href="https://cancergrace.org/forum/metastatic-head-and-neck-cancer" hreflang="en">Metastatic Head and Neck Cancer</a></div> <div class="field__item"><a href="https://cancergrace.org/forum/recurrent-headneck-cancer-hpv-virus-related-1272584" hreflang="und">Recurrent Head/Neck Cancer HPV virus related - 1272584</a></div> </div> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-video-language"> <div class="field field--name-field-video-language field--type-entity-reference field--label-above"> <div class="field__label">Video 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class="views-element-container block block-views block-views-blockcommunity-foum-block-4"> <h2>Online Community</h2> <div><div class="view view-community-foum view-id-community_foum view-display-id-block_4 js-view-dom-id-4b7bd67fd809e530efb621b75869866499d5b501ce24e853f1971fc7817b90e4"> <div class="view-content"> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forums/general-lungthoracic-cancer/can-lung-cancer-be-asymptomatic" hreflang="en">Can lung cancer be asymptomatic?</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"> <p>Hello Natalieaster, Welcome to Grace. &nbsp;I hope your stay with us is short, but we are always here to answer, listen and share. &nbsp;</p><p>Since your doctor didn't seem too worried...</p> </div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/tell-your-story-clinical-trials" hreflang="en">Tell Your Story-Clinical Trials</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/2025-blood-cancers-onctalk-oct-25-1030-am-pdt" hreflang="en">2025 Blood Cancers OncTalk, Oct 25 10:30 AM (PDT)</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/foro-en-espanol-sobre-terapias-dirigidas-para-el-cancer-de-pulmon" hreflang="en"> Foro en Español Sobre Terapias Dirigidas para el Cáncer de Pulmón </a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/2025-hpv-advances-patient-education-program-sponsored-merck" hreflang="en">2025 HPV Advances Patient Education Program-Sponsored by Merck</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/august-9-2025-foro-de-pacientes-sobre-terapias-dirigidas-en-cancer-de-pulmon-2025-webinar-en" hreflang="en">August 9, 2025, Foro de Pacientes sobre Terapias Dirigidas en Cáncer de Pulmón 2025 (Webinar en Vivo)</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/2024-2025-pea-program-videos-thank-you-exelixis-and-janssen-your-sponsorship" hreflang="en">2024-2025 PEA Program Videos-Thank You Exelixis and Janssen for Your Sponsorship</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> </div> </div> </div> </div> <div class="views-element-container mint-bg mint-block block block-views block-views-blockcommunity-foum-block-6"> <h2>Recent Comments</h2> <div><div class="view view-community-foum view-id-community_foum view-display-id-block_6 js-view-dom-id-d49e31ddca2d17f4c22af71b14b82eb5a7653edecace426e6037d754791875ce"> <header class="view-header"> JOIN THE CONVERSATION </header> <div class="view-content"> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forums/general-lungthoracic-cancer/can-lung-cancer-be-asymptomatic" hreflang="en">Can lung cancer be asymptomatic?</a></span></div><div class="views-field views-field-subject"><span class="field-content">Hello Natalieaster, Welcome…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/janinet-grace-community-outreach" typeof="Person" property="schema:name" datatype content="JanineT GRACE Community Outreach">JanineT GRACE …</span> on <time datetime="2025-09-22T14:30:46-07:00" class="datetime">Mon, 09/22/2025 - 14:30</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/another-question-about-tagrisso-not-working-and-alternatives" hreflang="en">another question about Tagrisso not working and alternatives</a></span></div><div class="views-field views-field-subject"><span class="field-content">The information you share is…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/libbierohan" typeof="Person" property="schema:name" datatype>LibbieRohan</span> on <time datetime="2025-09-21T20:55:52-07:00" class="datetime">Sun, 09/21/2025 - 20:55</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/pancoast-tumor-5" hreflang="und">Pancoast Tumor </a></span></div><div class="views-field views-field-subject"><span class="field-content">Hi Mel, I'm sorry for the…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/janinet-grace-community-outreach" typeof="Person" property="schema:name" datatype content="JanineT GRACE Community Outreach">JanineT GRACE …</span> on <time datetime="2025-08-28T11:26:14-07:00" class="datetime">Thu, 08/28/2025 - 11:26</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/pancoast-tumor-5" hreflang="und">Pancoast Tumor </a></span></div><div class="views-field views-field-subject"><span class="field-content">Hello.<br> I know this post is…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/mel" typeof="Person" property="schema:name" datatype>mel</span> on <time datetime="2025-08-27T08:20:20-07:00" class="datetime">Wed, 08/27/2025 - 08:20</time> </span></div></div> </div> </div> </div> </div> </div> </div> Tue, 20 Jun 2023 15:21:20 +0000 AlexandraGBeneke 7657 at https://cancergrace.org https://cancergrace.org/post/apply-now-be-part-clinical-trials-experiences-through-storytelling-patient-perspectives-2023 <span class="field field--name-title field--type-string field--label-hidden">Apply Now! Be a Part of the Clinical Trials Experiences Through Storytelling - Patient Perspectives 2023-24 Program</span> <span class="field field--name-uid field--type-entity-reference field--label-inline"><a href="https://cancergrace.org/users/dbrock" hreflang="en">dbrock</a></span> <span class="field field--name-created field--type-created field--label-above"><time datetime="2023-05-19T11:08:40-07:00" class="datetime">Fri, 05/19/2023 - 11:08</time> </span> <div class="layout layout--onecol"> <div class="layout__region layout__region--content"> <div class="block block-layout-builder block-extra-field-blocknodevideo-postflag-flagged-page"> <drupal-render-placeholder callback="flag.link_builder:build" arguments="0=node&amp;1=7643&amp;2=flagged_page&amp;3=rss" token="-V4A3WPhVilRXmFqMI9Or0fMYUPRC74iR2cj9YdlRW4"></drupal-render-placeholder> </div> <div class="block block-addtoany block-addtoany-block"> <span class="a2a_kit a2a_kit_size_32 addtoany_list" data-a2a-url="https://cancergrace.org/taxonomy/term/2252/feed" data-a2a-title="CancerGRACE"><a class="a2a_dd addtoany_share" href="https://www.addtoany.com/share#url=https%3A%2F%2Fcancergrace.org%2Ftaxonomy%2Fterm%2F2252%2Ffeed&amp;title=CancerGRACE"></a><a class="a2a_button_facebook"></a><a class="a2a_button_twitter"></a><a class="a2a_button_email"></a></span> </div> </div> </div> <div class="layout layout--twocol-section layout--twocol-section--25-75"> <div class="layout__region layout__region--first"> <div class="coral-bg coral-carat-bottom block-content--basic block-content--view-mode-full block block-layout-builder block-inline-blockbasic"> <div class="clearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item"><h2> Article and Video CATEGORIES </h2> </div> </div> <div class="views-element-container grey-bg block block-views block-views-blocktaxonomy-sidebar-block-1"> <h2>Cancer Journey</h2> <div><div class="view view-taxonomy-sidebar view-id-taxonomy_sidebar view-display-id-block_1 js-view-dom-id-467aaa723b84fdf795792ba6f1f640dbf79500b77e6396d80f3404f1149e119a"> <form class="ctools-jump-menu" action="https://cancergrace.org/" method="post" id="ctools-jump-menu" accept-charset="UTF-8"> <div class="view-content"> <h3> Search By </h3> <select class="ViewsJumpMenu js-viewsJumpMenu chosen-disable" title="-- Choose --" id="view-jumpmenutaxonomy-sidebar"> <option>-- Choose --</option> <optgroup label> <option></option> <option data-url="/taxonomy/term/18">Just Diagnosed </option> <option data-url="/taxonomy/term/19">In Treatment </option> <option data-url="/taxonomy/term/20">In Remission </option> <option data-url="/taxonomy/term/21">Survivorship </option> </optgroup> <optgroup label> <option></option> <option data-url="/taxonomy/term/2250">Lung Cancer </option> <option data-url="/taxonomy/term/2251">Blood Cancer </option> <option data-url="/taxonomy/term/2252">Head and Neck Cancer </option> <option data-url="/taxonomy/term/2253">Other </option> <option data-url="/taxonomy/term/2286">Breast Cancer </option> <option data-url="/taxonomy/term/2287">Melanoma </option> <option data-url="/taxonomy/term/2288">Bladder Cancer </option> </optgroup> <optgroup label> <option></option> <option data-url="/taxonomy/term/2">Basic Cancer Info </option> <option data-url="/taxonomy/term/3">Cancer Treatments/ Symptom Mgmt </option> <option data-url="/taxonomy/term/4">Coping with Cancer/ Social Work </option> <option data-url="/taxonomy/term/6">Glossary/ Abbreviations </option> <option data-url="/taxonomy/term/7">FAQs About Cancer </option> <option data-url="/taxonomy/term/28">GRACE News </option> <option data-url="/taxonomy/term/87">Clinical Trials </option> </optgroup> </select> </div> </form> <div class="view-footer"> <p> Search here for cancer terms and phrases within cancerGRACE.org, and find tons of great information available on the GRACE website. </p> </div> </div> </div> </div> </div> <div class="layout__region layout__region--second"> <div class="header-one block block-layout-builder block-field-blocknodevideo-posttitle"> <span class="field field--name-title field--type-string field--label-hidden">Apply Now! Be a Part of the Clinical Trials Experiences Through Storytelling - Patient Perspectives 2023-24 Program</span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postuid"> <span class="field field--name-uid field--type-entity-reference field--label-inline"><a href="https://cancergrace.org/users/dbrock" hreflang="en">dbrock</a></span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postcreated"> <span class="field field--name-created field--type-created field--label-above"><time datetime="2023-05-19T11:08:40-07:00" class="datetime">Fri, 05/19/2023 - 11:08</time> </span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-subtitle"> <div class="field field--name-field-subtitle field--type-string-long field--label-hidden field__item">Applications are now open to be a part of this paid program - 2023-24 Patient Perspectives Program - Clinical Trials Experiences Through Storytelling</div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-author"> <div class="field field--name-field-author field--type-entity-reference field--label-inline clearfix"> <div class="field__label">Author</div> <div class="field__item">Denise Brock</div> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-transcript"> <div class="field field--name-field-transcript field--type-file field--label-hidden field__item"> <span class="file file--mime-application-pdf file--application-pdf"> <a href="https://cancergrace.org/sites/default/files/2023-24%20GRACE%20Patient%20Perspectives_%20Clinical%20Trials%20Experiences%20-%20Program%20Application.pdf" type="application/pdf" title="2023-24 GRACE Patient Perspectives_ Clinical Trials Experiences - Program Application.pdf">Download Hardcopy Application Here</a></span> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-feature-media"> <div class="field field--name-field-feature-media field--type-entity-reference field--label-hidden field__item"><article class="media media--type-image media--view-mode-initial-size"> <div class="field field--name-field-media-image field--type-image field--label-visually_hidden"> <div class="field__label visually-hidden">Image</div> <div class="field__item"> <img loading="lazy" src="https://cancergrace.org/sites/default/files/2023-05/2023-24%20Patient%20Perspectives%20%281280%20%C3%97%20425%20px%29.png" width="1280" height="425" alt="Tell your story! Apply now for the Clinical Trials Experiences through Storytelling Program" typeof="foaf:Image"> </div> </div> </article> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postbody"> <div class="clearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item"><h5 class="text-align-center"><strong><span class="te-pumpkin">We are excited to launch our third year of this program; tell your story and help us help others!</span></strong></h5> <hr> <p class="text-align-center"><a class="button" href="https://forms.gle/yydXwbBzHMydGNVC9"><strong>Apply Online Now for this paid opportunity to tell your story!</strong></a></p> <p class="text-align-center">&nbsp;</p> <hr> <p class="text-align-center">&nbsp;</p> <p><b><i>GRACE Patient Perspectives: Clinical Trials Experiences Storytelling Program Overview</i></b></p> <p>&nbsp;</p> <p><b>The goal of this <i>Patient Perspectives</i> program is to give a voice to those who have experience in participating in a clinical trial for a cancer diagnosis.&nbsp; By telling your story, you can educate others on the process, discuss your difficulties and share your accomplishments.&nbsp; Your voice helps to educate and advocate for others who are in or who may be considering a clinical trial.&nbsp; This is a paid opportunity and you will receive a stipend for your participation!</b><br> &nbsp;</p> <p>Storytelling will take the form of written, video and/or audio/podcast to reach the largest audience.&nbsp; GRACE staff will coach and support participants on digital outreach and advocacy.&nbsp;</p> <p>&nbsp;</p> <p>All people currently enrolled in, or with past enrollment in, a clinical trial for a cancer diagnosis are welcome and encouraged to apply. GRACE’s designated committee will review the nominees and select up to 3 applicants for participation in the 2023-24 program.</p> <p>&nbsp;</p> <p><b><i>Who is GRACE?</i></b></p> <p>&nbsp;</p> <p>The Global Resource for Advancing Cancer Education (GRACE, cancerGRACE.org) is a non-profit organization founded by leading Thoracic Oncologist, Dr. Howard (Jack) West, in 2007. &nbsp;GRACE’s mission is to provide expert-mediated information directly to people with a cancer diagnosis and their caregivers to empower them to become direct partners in their cancer treatment.&nbsp; We currently produce over 300 short videos each year, reaching our community in over 190 countries.&nbsp;</p> <p>&nbsp;</p> <p><b><i>Benefits of Participation</i></b></p> <p><b><i>&nbsp;</i></b></p> <p><b>Applicants selected for this year’s program will work closely with GRACE staff to develop new educational content and learn new communication skills through the storytelling process.</b><br> Participants will receive training on digitally distributed content, social media and other platforms.&nbsp; Participants work will be highlighted and shared by GRACE, our network of established leaders in the oncology community, and GRACE board members with an array of interests and connections.&nbsp; &nbsp;&nbsp;</p> <p> Participants will receive a stipend, training in communication and media platforms, and a tech ‘package’. &nbsp;</p> <p>&nbsp;</p> <p><b><i>Expectations</i></b></p> <p>&nbsp;</p> <p>Participants will work with GRACE to develop program formats and production and will present a proposal based on their experience in a clinical trial program. &nbsp;Participants will be expected to attend (via ZOOM) regular monthly meetings through the program year to learn and to discuss their ideas. A minimum of three (3) media productions per participant will be expected by the end of the program.&nbsp;&nbsp;<br> &nbsp;</p> <p><b><i>Ideal Candidates</i></b></p> <p>&nbsp;</p> <p><b>People who are navigating a cancer diagnosis, who are currently or have been involved in a clinical trial, and who have a passion for helping others and telling their story are ideal for this program. &nbsp;</b></p> <p>&nbsp;</p> <p>Applicants should have a particular interest and passion for communications, sharing experiences, storytelling, and patient education.&nbsp; People looking for a way to give back to the cancer community, who exhibit strong written and oral communication skills coupled with a passion for sharing experiences in order to educate and advocate will thrive in this program. &nbsp; GRACE will guide them through boosting their voice to advocate for themselves and others in the cancer community.&nbsp; &nbsp; &nbsp;</p> <p>&nbsp;</p> <p>2023 is our third year for this program, and we are excited to continue to generate a platform for patient advocacy and sharing patient education in the area of clinical trials.&nbsp;&nbsp;<br> &nbsp;</p> <p><b>All application forms must be submitted by July 1, 2023 for consideration. Applicants will be contacted by August 1, 2023 with information regarding acceptance and the next steps.</b></p> <p> To apply online please <a class="button" href="https://forms.gle/EJgUXF4KiAEcunkP8">click here</a> OR download the above attached pdf form and email it to <a href="mailto:dbrock@cancerGRACE.org">dbrock@cancerGRACE.org</a>.</p> <hr> <p> Any questions, please contact Denise Brock at <a href="mailto:dbrock@cancergrace.org">dbrock@cancergrace.org</a> or 888-501-1025 x2.<br> &nbsp;</p> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-related-content-video"> <div class="field field--name-field-related-content-video field--type-entity-reference field--label-above"> <div class="field__label">Related Content</div> <div class="field__items"> <div class="field__item"><a href="https://cancergrace.org/2021-patient-perspectives-clinical-trials-experiences-through-storytelling" hreflang="und">2021 Patient Perspectives: Clinical Trials 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href="https://cancergrace.org/forum/2024-2025-pea-program-videos-thank-you-exelixis-and-janssen-your-sponsorship" hreflang="en">2024-2025 PEA Program Videos-Thank You Exelixis and Janssen for Your Sponsorship</a></span></div><div class="views-field views-field-comment-body"><div class="field-content"></div></div></div> </div> </div> </div> </div> <div class="views-element-container mint-bg mint-block block block-views block-views-blockcommunity-foum-block-6"> <h2>Recent Comments</h2> <div><div class="view view-community-foum view-id-community_foum view-display-id-block_6 js-view-dom-id-30d83746d02a522c5775673bb34696934f605697b7580eb5e530f5ae6b2031e4"> <header class="view-header"> JOIN THE CONVERSATION </header> <div class="view-content"> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forums/general-lungthoracic-cancer/can-lung-cancer-be-asymptomatic" hreflang="en">Can lung cancer be asymptomatic?</a></span></div><div class="views-field views-field-subject"><span class="field-content">Hello Natalieaster, Welcome…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/janinet-grace-community-outreach" typeof="Person" property="schema:name" datatype content="JanineT GRACE Community Outreach">JanineT GRACE …</span> on <time datetime="2025-09-22T14:30:46-07:00" class="datetime">Mon, 09/22/2025 - 14:30</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/another-question-about-tagrisso-not-working-and-alternatives" hreflang="en">another question about Tagrisso not working and alternatives</a></span></div><div class="views-field views-field-subject"><span class="field-content">The information you share is…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/libbierohan" typeof="Person" property="schema:name" datatype>LibbieRohan</span> on <time datetime="2025-09-21T20:55:52-07:00" class="datetime">Sun, 09/21/2025 - 20:55</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/pancoast-tumor-5" hreflang="und">Pancoast Tumor </a></span></div><div class="views-field views-field-subject"><span class="field-content">Hi Mel, I'm sorry for the…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/janinet-grace-community-outreach" typeof="Person" property="schema:name" datatype content="JanineT GRACE Community Outreach">JanineT GRACE …</span> on <time datetime="2025-08-28T11:26:14-07:00" class="datetime">Thu, 08/28/2025 - 11:26</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/pancoast-tumor-5" hreflang="und">Pancoast Tumor </a></span></div><div class="views-field views-field-subject"><span class="field-content">Hello.<br> I know this post is…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/mel" typeof="Person" property="schema:name" datatype>mel</span> on <time datetime="2025-08-27T08:20:20-07:00" class="datetime">Wed, 08/27/2025 - 08:20</time> </span></div></div> </div> </div> </div> </div> </div> </div> Fri, 19 May 2023 18:08:40 +0000 dbrock 7643 at https://cancergrace.org https://cancergrace.org/forum/information-everyone-should-have <span property="dc:title" class="field field--name-title field--type-string field--label-hidden">Information everyone should have :)</span> <span class="field field--name-uid field--type-entity-reference field--label-above"><a href="https://cancergrace.org/users/janinet-grace-community-outreach" rel="sioc:has_creator" hreflang="en">JanineT GRACE Community Outreach</a> <div class="post-count"><b>Posts:</b>710</div> <div class="bio"> GRACE Community Outreach Team</div> <div class="picture"> <img src="https://cancergrace.org/sites/default/files/styles/thumbnail/public/pictures/Janine%20bio%20in%20template.png?itok=J2FnEqoO"> </div></span> <span property="dc:date dc:created" content="2023-04-30T18:01:23+00:00" datatype="xsd:dateTime" class="field field--name-created field--type-created field--label-hidden"><time datetime="2023-04-30T11:01:23-07:00" class="datetime">Sun, 04/30/2023 - 11:01</time> </span> <div class="layout layout--onecol"> <div class="layout__region layout__region--content"> <div class="block block-layout-builder block-field-blocknodeforumcreated"> <span property="dc:date dc:created" content="2023-04-30T18:01:23+00:00" datatype="xsd:dateTime" class="field field--name-created field--type-created field--label-hidden"><time datetime="2023-04-30T11:01:23-07:00" class="datetime">Sun, 04/30/2023 - 11:01</time> </span> </div> <div class="block block-layout-builder block-field-blocknodeforumuid"> <span class="field field--name-uid field--type-entity-reference field--label-above"><a href="https://cancergrace.org/users/janinet-grace-community-outreach" hreflang="en">JanineT GRACE Community Outreach</a> <div class="post-count"><b>Posts:</b>710</div> <div class="bio"> GRACE Community Outreach Team</div> <div class="picture"> <img src="https://cancergrace.org/sites/default/files/styles/thumbnail/public/pictures/Janine%20bio%20in%20template.png?itok=J2FnEqoO"> </div></span> </div> <div class="block block-layout-builder block-field-blocknodeforumbody"> <div property="content:encoded" class="field field--name-body field--type-text-with-summary field--label-hidden clearfix text-formatted field__item"><p>Below are patient advocate info links that you may have missed.&nbsp; They were recorded during our targeted therapies forum but these pieces are valuable to anyone.&nbsp;</p> <p>&nbsp;</p> <p><a href="https://www.youtube.com/watch?v=0DjDg3-0cmU&amp;list=PLWsyUmdjLXhHeJbIe-G4TU_0zA7TZ608Z&amp;index=83&amp;pp=iAQB">Nutrition during cancer treatment</a></p> <p>&nbsp;</p> <p><a href="https://www.youtube.com/watch?v=Iy0MdDsqmvM&amp;list=PLWsyUmdjLXhHeJbIe-G4TU_0zA7TZ608Z&amp;index=82&amp;pp=iAQB">Finding resources for patient and caregivers</a></p> <p>&nbsp;</p> <p><a href="https://www.youtube.com/watch?v=mU5d6TGWIrM&amp;list=PLWsyUmdjLXhHeJbIe-G4TU_0zA7TZ608Z&amp;index=81&amp;pp=iAQB">Talking to loved ones about your diagnosis</a></p> <p>&nbsp;</p> <p><a href="https://www.youtube.com/watch?v=vp6gOEQhc6c&amp;list=PLWsyUmdjLXhHeJbIe-G4TU_0zA7TZ608Z&amp;index=77&amp;pp=iAQB">Advice for newly diagnosed patients</a></p> <p>&nbsp;</p> <p><a href="https://www.youtube.com/watch?v=6n_iPJWcVSw&amp;list=PLWsyUmdjLXhHeJbIe-G4TU_0zA7TZ608Z&amp;index=78&amp;pp=iAQB">Handling the stress of scans</a></p> <p>&nbsp;</p> <p><a href="https://www.youtube.com/watch?v=QpeJZw_0tS0&amp;list=PLWsyUmdjLXhHeJbIe-G4TU_0zA7TZ608Z&amp;index=74&amp;pp=iAQB">An advocate's story: Finding your community</a>&nbsp; Tons of good info from Terri Conneran from KRAS Kickers</p> <p>&nbsp;</p> <p><a href="https://www.youtube.com/watch?v=NhiTG3IHSPI&amp;list=PLWsyUmdjLXhHeJbIe-G4TU_0zA7TZ608Z&amp;index=46&amp;pp=iAQB">Traveling for a clinical trial</a></p> <p>&nbsp;</p> <p>We welcome discussion, questions and input on anyone of these subjects, here or a new thread.&nbsp;</p> <p>&nbsp;</p> <p>Here's to today,</p> <p>Janine</p> </div> <div class="clearfix text-formatted field field--name-signature field--type-text-long field--label-hidden field__item"> I joined GRACE as a caregiver for my husband who had a Pancoast tumor, NSCLC stage III in 2009. He had curative chemo/rads then it was believed he had a recurrence in the spine/oligometastasis that was radiated. He's 10 years out from treatment. </div> </div> <div class="block block-layout-builder block-field-blocknodeforumtaxonomy-forums"> <div class="field field--name-taxonomy-forums field--type-entity-reference field--label-above"> <div class="field__label">Forums</div> <div class="field__item"><a href="https://cancergrace.org/forums/whole-person-care-0" hreflang="en">Whole Person Care</a></div> </div> </div> <div class="block block-layout-builder block-extra-field-blocknodeforumflag-flagged-page"> <drupal-render-placeholder callback="flag.link_builder:build" arguments="0=node&amp;1=7635&amp;2=flagged_page&amp;3=rss" token="Qsi4E-oCxZRiGqx4djY9FYhRrdwrFJaF8eG1LaRdRf4"></drupal-render-placeholder> </div> </div> </div> <div class="layout layout--onecol"> <div class="layout__region layout__region--content"> <div class="block block-layout-builder block-field-blocknodeforumcomment-forum"> <section class="field field--name-comment-forum field--type-comment field--label-hidden comment-wrapper"> <article data-comment-user-id="26041" id="comment-29395" class="comment js-comment"> <p class="date__submitted"> Reply # - September 8, 2023, 02:36 AM</p> <div class="content"> <h3><a href="https://cancergrace.org/comment/29395#comment-29395" class="permalink" rel="bookmark" hreflang="en">Valuable share!</a></h3> <div class="author"> <span lang about="https://cancergrace.org/users/drpriyankachiripal" typeof="schema:Person" property="schema:name" datatype>drpriyankachiripal</span> <div class="post-count"> <b>Posts:</b> 2</div> <div class="bio"> I have been in the medical profession for more than 10 years and have extensive experience treating Breast Cancer. I am an oncoplastic breast surgeon with the Zydus Cancer Centre, in Ahmedabad, India, and I work closely with breast cancer patients. You may PM me. </div> <article typeof="schema:Person" about="https://cancergrace.org/users/drpriyankachiripal" class="profile"> <div class="field field--name-user-picture field--type-image field--label-hidden field__item"> <a href="https://cancergrace.org/users/drpriyankachiripal" hreflang="en"><img loading="lazy" src="https://cancergrace.org/sites/default/files/styles/thumbnail/public/pictures/logo-breasecancersurgeon-drpriyank-chiripal-white.jpeg?itok=UxxNf1oY" width="100" height="100" alt="Profile picture for user drpriyankachiripal" typeof="foaf:Image" class="image-style-thumbnail"> </a> </div> <drupal-render-placeholder callback="masquerade.callbacks:renderCacheLink" arguments="0=26041" token="7ZaV0l1qHQ82GEetsoQ4mwIbH_YjdAKHBJsCypR_Du4"></drupal-render-placeholder></article> </div> <div class="clearfix text-formatted field field--name-comment-body field--type-text-long field--label-hidden field__item"><p>Valuable share!</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=29395&amp;1=default&amp;2=en&amp;3=" token="fxaotcjGa2562xDJStq9zedz20bk0bbc3Gy-txmWyhg"></drupal-render-placeholder> </div> </article> </section> </div> <div class="block block-layout-builder block-extra-field-blocknodeforumlinks"> </div> </div> </div> Sun, 30 Apr 2023 18:01:23 +0000 JanineT GRACE Community Outreach 7635 at https://cancergrace.org https://cancergrace.org/forum/information-everyone-should-have#comments https://cancergrace.org/post/como-apoyar-tu-pareja-cuidando-al-cuidador-parte-2 <span class="field field--name-title field--type-string field--label-hidden">Cómo apoyar a tu pareja - Cuidando al cuidador - Parte 2</span> <span class="field field--name-uid field--type-entity-reference field--label-inline"><a href="https://cancergrace.org/users/alexandragbeneke" hreflang="en">AlexandraGBeneke</a></span> <span class="field field--name-created field--type-created field--label-above"><time datetime="2023-03-24T11:44:58-07:00" class="datetime">Fri, 03/24/2023 - 11:44</time> </span> <div class="layout layout--onecol"> <div class="layout__region layout__region--content"> <div class="block block-layout-builder block-extra-field-blocknodevideo-postflag-flagged-page"> <drupal-render-placeholder callback="flag.link_builder:build" arguments="0=node&amp;1=7623&amp;2=flagged_page&amp;3=rss" token="6ejSoc6Gs_v8ReYK8Y8DVe4KPByf_rrPEpsK93V6e0o"></drupal-render-placeholder> </div> <div class="block block-addtoany block-addtoany-block"> <span class="a2a_kit a2a_kit_size_32 addtoany_list" data-a2a-url="https://cancergrace.org/taxonomy/term/2252/feed" data-a2a-title="CancerGRACE"><a class="a2a_dd addtoany_share" href="https://www.addtoany.com/share#url=https%3A%2F%2Fcancergrace.org%2Ftaxonomy%2Fterm%2F2252%2Ffeed&amp;title=CancerGRACE"></a><a class="a2a_button_facebook"></a><a class="a2a_button_twitter"></a><a class="a2a_button_email"></a></span> </div> </div> </div> <div class="layout layout--twocol-section layout--twocol-section--25-75"> <div class="layout__region layout__region--first"> <div class="coral-bg coral-carat-bottom block-content--basic block-content--view-mode-full block block-layout-builder block-inline-blockbasic"> <div class="clearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item"><h2> Article and Video CATEGORIES </h2> </div> </div> <div class="views-element-container grey-bg block block-views block-views-blocktaxonomy-sidebar-block-1"> <h2>Cancer Journey</h2> <div><div class="view view-taxonomy-sidebar view-id-taxonomy_sidebar view-display-id-block_1 js-view-dom-id-3836ee28321be526d8b596fff528d63d295b96c1ffb420c2edf937e89d213786"> <form class="ctools-jump-menu" action="https://cancergrace.org/" method="post" id="ctools-jump-menu" accept-charset="UTF-8"> <div class="view-content"> <h3> Search By </h3> <select class="ViewsJumpMenu js-viewsJumpMenu chosen-disable" title="-- Choose --" id="view-jumpmenutaxonomy-sidebar"> <option>-- Choose --</option> <optgroup label> <option></option> <option data-url="/taxonomy/term/18">Just Diagnosed </option> <option data-url="/taxonomy/term/19">In Treatment </option> <option data-url="/taxonomy/term/20">In Remission </option> <option data-url="/taxonomy/term/21">Survivorship </option> </optgroup> <optgroup label> <option></option> <option data-url="/taxonomy/term/2250">Lung Cancer </option> <option data-url="/taxonomy/term/2251">Blood Cancer </option> <option data-url="/taxonomy/term/2252">Head and Neck Cancer </option> <option data-url="/taxonomy/term/2253">Other </option> <option data-url="/taxonomy/term/2286">Breast Cancer </option> <option data-url="/taxonomy/term/2287">Melanoma </option> <option data-url="/taxonomy/term/2288">Bladder Cancer </option> </optgroup> <optgroup label> <option></option> <option data-url="/taxonomy/term/2">Basic Cancer Info </option> <option data-url="/taxonomy/term/3">Cancer Treatments/ Symptom Mgmt </option> <option data-url="/taxonomy/term/4">Coping with Cancer/ Social Work </option> <option data-url="/taxonomy/term/6">Glossary/ Abbreviations </option> <option data-url="/taxonomy/term/7">FAQs About Cancer </option> <option data-url="/taxonomy/term/28">GRACE News </option> <option data-url="/taxonomy/term/87">Clinical Trials </option> </optgroup> </select> </div> </form> <div class="view-footer"> <p> Search here for cancer terms and phrases within cancerGRACE.org, and find tons of great information available on the GRACE website. </p> </div> </div> </div> </div> </div> <div class="layout__region layout__region--second"> <div class="header-one block block-layout-builder block-field-blocknodevideo-posttitle"> <span class="field field--name-title field--type-string field--label-hidden">Cómo apoyar a tu pareja - Cuidando al cuidador - Parte 2</span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postuid"> <span class="field field--name-uid field--type-entity-reference field--label-inline"><a href="https://cancergrace.org/users/alexandragbeneke" hreflang="en">AlexandraGBeneke</a></span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postcreated"> <span class="field field--name-created field--type-created field--label-above"><time datetime="2023-03-24T11:44:58-07:00" class="datetime">Fri, 03/24/2023 - 11:44</time> </span> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-subtitle"> <div class="field field--name-field-subtitle field--type-string-long field--label-hidden field__item">El papel de la pareja y del cuidador cuando se le diagnostica un cáncer</div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-author"> <div class="field field--name-field-author field--type-entity-reference field--label-inline clearfix"> <div class="field__label">Author</div> <div class="field__item">Sharika Amin, GRACE Guest Faculty</div> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postbody"> <div class="clearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item"><h2 class="text-align-center">Formas de hacer frente a las consecuencias del cuidado de otras personas</h2> <p>&nbsp;</p> <hr> <p>En esta sección, analizamos posibles medidas que podemos tomar para apoyarnos en las luchas que supone ser cuidador.</p> <p>&nbsp;</p> <p><u><strong>Tomarse un descanso/ Encontrar el "tiempo para mí"</strong></u></p> <p>&nbsp;</p> <p>Cuidar de alguien parece una ocupación a tiempo completo, pero no tiene por qué serlo. Cuidar de uno mismo nos prepara para desempeñar mejor nuestro papel.</p> <p>La mayoría de los cuidadores dudan a la hora de tomarse un descanso de sus responsabilidades, ya que se sienten culpables por alejarse, aunque sea temporalmente. Sin embargo, negar sus necesidades de salud física y mental durante un tiempo prolongado trastocará su identidad.</p> <p>Intenta salir de casa y estar solo a diario, aunque sólo sea unos minutos. Puede ser algo tan sencillo como dar un paseo o comprar comida. Algunos cuidadores trabajan a tiempo completo mientras atienden a su ser querido. Aunque esto puede ser un descanso necesario, también puede añadir estrés a la situación. Cualquier actividad que te permita la independencia de ser tu mismo, por pequeña que sea, puede ayudarte a centrarte y evitar el agotamiento.</p> <p>&nbsp;</p> <article class="align-right media media--type-image media--view-mode-_60x360"> <div class="field field--name-field-media-image field--type-image field--label-visually_hidden"> <div class="field__label visually-hidden">Image</div> <div class="field__item"> <img loading="lazy" src="https://cancergrace.org/sites/default/files/styles/360x360/public/2023-03/support-a-partner-2%20%281%29.jpg?itok=Xg8t4Xhx" width="360" height="360" alt="caregiver part2 " typeof="foaf:Image" class="image-style-_60x360"> </div> </div> </article> <p><u><strong>Conoce tus limitaciones: no puedes verter de una jarra vacía</strong></u></p> <p>&nbsp;</p> <p>Los cuidadores también son individuos que tienen sus propias necesidades, deseos y anhelos. También disponen de una cantidad determinada de recursos.&nbsp;</p> <p>Actuamos como cuidadores de personas que suelen estar cerca de nosotros y, por tanto, nos sobrecargamos de responsabilidades. A veces nos sentimos culpables y tememos no estar dando lo mejor de nosotros mismos.&nbsp;</p> <p>Una persona sólo puede dar hasta cierto punto. Después, necesita reponerse. Es importante recordar que la incapacidad de dar en un momento dado no se traduce en fracaso.&nbsp;</p> <p>Poner límites es sano y pedir ayuda también lo es. Establecer límites realistas sobre lo que puedes hacer se convierte en algo esencial. Por ejemplo, si tienes una lesión de espalda y tu ser querido es demasiado grande para que lo levantes, puedes ayudarle a darse la vuelta en la cama, pero no intentes levantarlo tú solo ni cogerlo si se cae. Puedes acabar gravemente herido e incapacitado para ayudar a alguien. Aquí es donde se necesita la ayuda de expertos; las enfermeras de atención domiciliaria o los fisioterapeutas pueden enseñarte a trabajar con seguridad. También pueden ayudarte a conseguir equipos especiales si los necesitas. Tu propia salud y seguridad deben ser lo primero si quieres seguir ayudando a tu ser querido.</p> <p>&nbsp;</p> <p><u><strong>Cómo encontrar apoyo para ti mismo</strong></u></p> <p>&nbsp;</p> <p>Lo más sorprendente del apoyo es que te ayuda a "compartir". Compartir la carga, las responsabilidades, el trabajo. No promete quitártela, pero sin duda ayuda a aliviarla compartiéndola. Algunas posibilidades pueden ser:</p> <p>&nbsp;</p> <p>1. Familia y parientes - Tradicionalmente, el apoyo se encuentra en la familia, los parientes y los amigos, que proporcionan un espacio seguro para sentir las diversas emociones que surgen en el viaje del tratamiento contra el cáncer.</p> <p>&nbsp;</p> <p>2. Grupos de apoyo - Algunos de nosotros podemos encontrar más consuelo en compartir y buscar el apoyo de personas que se encuentran en una situación similar a la nuestra, lo que te hace sentir realmente comprendido. Hablar con otras personas que se encuentran en situaciones similares a la propia puede ayudar a aliviar la soledad. También se obtienen ideas útiles de los demás que pueden ser de ayuda. GRACE tiene un foro activo para aquellos que buscan apoyo, y se puede encontrar <a href="https://cancergrace.org/forum">aquí</a>.</p> <p>&nbsp;</p> <p>3. Asesoramiento individual - Otra opción es hablar con un profesional capacitado para ayudar, apoyar y proporcionar atención en la situación para aumentar la auto-eficacia.</p> <p>&nbsp;</p> <p><br><br> <u><strong>Prepárate para que algunas personas no te ayuden</strong></u></p> <p>&nbsp;</p> <p>Cuando alguien padece una enfermedad grave como el cáncer, los amigos y la familia suelen tender la mano para ayudar. A veces, personas a las que no conoces muy bien también quieren echarte una mano. Sin embargo, es importante darse cuenta de que hay otras personas que tal vez no puedan o no quieran ayudarte. Puede que te preguntes por qué alguien no se ofrecería a ayudarte a ti o a tu familia cuando estáis lidiando con tantas cosas.</p> <p>Algunas razones comunes son:</p> <p>&nbsp;</p> <ul> <li style="list-style-type: disc;">Enfrentarse a sus propios problemas</li> <li style="list-style-type: disc;">Falta de tiempo</li> <li style="list-style-type: disc;">Miedo al cáncer o haber tenido ya una mala experiencia con el cáncer; no querer implicarse y volver a sentir el dolor.</li> <li style="list-style-type: disc;">Creer que es mejor mantener las distancias cuando la gente lo está pasando mal.</li> <li style="list-style-type: disc;">No darse cuenta de lo difíciles que son realmente las cosas para ti, o no entender que necesitas ayuda a menos que se la pidas directamente.</li> <li style="list-style-type: disc;">Sentirse incómodos porque no saben cómo demostrar que se preocupan por ti.</li> <li style="list-style-type: disc;">Diferencias culturales en cuanto a la conveniencia de ofrecer atención</li> </ul> <p>&nbsp;</p> <p>Si alguien no te ofrece la ayuda que necesitas, puedes hablar con él sobre tus expectativas, sobre todo si la relación forma parte de tu vida. Es muy posible que estén abiertos a discutir el tema y te permitan ver su punto de vista. También puedes optar por aceptarlo. Sea cual sea tu elección, tratar el tema puede evitar que se acumulen el resentimiento y el estrés.</p> <p>&nbsp;</p> <p><u><strong>Auto-compasión</strong></u></p> <p>&nbsp;</p> <p>Los sentimientos no son inherentemente "buenos" o "malos"; simplemente existen y hay que entenderlos. El primer paso para comprender tus sentimientos es saber que son normales y, lo que es más importante, válidos.&nbsp;</p> <p>Algunos sentimientos que pueden aparecer y desaparecer son:</p> <p>&nbsp;</p> <ul> <li style="list-style-type: disc;">Tristeza. Está bien sentirse triste. Sin embargo, si dura más de dos semanas y te impide hacer lo que necesitas, habla con tu médico.&nbsp;</li> <li style="list-style-type: disc;">Enojo. Puede estar enojado&nbsp;contigo mismo o con miembros de tu familia. Puedes estar enfadado con la persona a la que cuidas. Debes saber&nbsp;que la ira suele ser consecuencia del miedo, el pánico o el estrés. Intenta&nbsp;ver qué hay detrás de la ira.&nbsp;</li> <li style="list-style-type: disc;">Duelo. Puede que sientas la pérdida de lo que más valora. Puede tratarse de la salud de tu ser querido o de la pérdida de la vida cotidiana que tenías antes de que le detectaran el cáncer. Permítete llorar estas pérdidas.&nbsp;</li> <li style="list-style-type: disc;">Culpabilidad. Sentirte culpable también es habitual. Puedes pensar que no estás ayudando lo suficiente, o puedes sentirte culpable de estar sano.&nbsp;</li> <li style="list-style-type: disc;">Soledad. Puedes sentirte solo, incluso con mucha gente a tu alrededor. Puedes sentir que nadie entiende tus problemas. También es posible que pases menos tiempo con los demás.</li> </ul> <p>&nbsp;</p> <p>Experimentar estos sentimientos sólo significa que eres humano y que necesitas la misma atención y los mismos cuidados que tú, como cuidador, extiendes a los demás a tu alrededor.</p> <p>&nbsp;</p> <p><u><strong>Cuidar tu cuerpo</strong></u></p> <p>&nbsp;</p> <p>Puede que te sientas demasiado ocupado o preocupado por tu ser querido como para pensar en tu propia salud. Sin embargo, es habitual que los cuidadores tengan problemas de sueño, dolores de cabeza y ansiedad, además de otros cambios físicos.&nbsp;</p> <p>¿Tenías problemas de salud antes de convertirte en cuidador? Si es así, ahora es aún más importante cuidarte. Además, añadir factores estresantes a tu vida puede causarte nuevos problemas de salud. Asegúrate de informar a tu médico si notaa algún cambio nuevo en tu cuerpo. Manténte al día con tus propias necesidades de salud.&nbsp;</p> <p>Intenta lo siguiente:</p> <p>&nbsp;</p> <ul> <li style="list-style-type: disc;">Acudir a todas tus revisiones</li> <li style="list-style-type: disc;">Tomar tus medicamentos</li> <li style="list-style-type: disc;">Comer saludablemente</li> <li style="list-style-type: disc;">Descansar lo suficiente&nbsp;</li> <li style="list-style-type: disc;">Hacer ejercicio</li> <li style="list-style-type: disc;">Dedícate tiempo a relajarte</li> </ul> <p>&nbsp;</p> <p><u><strong>Encontrar el sentido a todo durante el cáncer</strong></u></p> <p>&nbsp;</p> <p>El cáncer hace que muchos cuidadores vean la vida de nuevas maneras.&nbsp;</p> <p>Piensan en el propósito de la vida y a menudo se centran en lo que más valoran. Es posible que tu y tu ser querido se pregunten por qué el cáncer ha llegado a sus vidas. Puede que anhelen que las cosas vuelvan a ser como antes de la enfermedad. También es posible que vean cosas buenas, como por ejemplo, que el cáncer les une más. Es normal ver la enfermedad tanto en positivo como en negativo.</p> <p>&nbsp;</p> <p><u><strong>Habla con tu pareja</strong></u></p> <p>&nbsp;</p> <p>Muchos de los miedos e inseguridades que surgen tras el diagnóstico</p> <p>pueden estar centrados en los retos asociados a la toma de decisiones y el bienestar de nuestra pareja enferma de cáncer. A veces, mantener una conversación sincera y empática puede ayudar a apaciguar los temores.</p> <p>Algunas sugerencias son:&nbsp;</p> <p>&nbsp;</p> <ul> <li style="list-style-type: disc;">Hablar de cómo se siente cada uno</li> <li style="list-style-type: disc;">Compartir cómo lo está afrontando cada uno&nbsp;</li> <li style="list-style-type: disc;">Analicen las cosas que les causan estrés a ambos</li> <li style="list-style-type: disc;">Hablen de las decisiones que pueden tomar juntos.</li> <li style="list-style-type: disc;">Intenten estar agradecidos el uno por el otro&nbsp;</li> <li style="list-style-type: disc;">Dediquen tiempo a otras cosas aparte del cáncer</li> </ul> <p>&nbsp;</p> <p>El tratamiento y la recuperación del cáncer es un proceso que requiere apoyo, paciencia, atención y amabilidad, tanto para el paciente como para su cuidador. Sé amable contigo mismo como cuidador y nunca dudes en pedir ayuda, ya sea profesional o personal. No estás solo.</p> <p>&nbsp;</p> <hr> <p><em>Sharika se licenció en Psicología Clínica en el Hospital Dr. Ram Manohar Lohia (PGIMER) y obtuvo un máster en Asesoramiento Clínico y Psicología Aplicada en la Universidad de Delhi. &nbsp;Agradecemos a Sharika su voluntariado y su ayuda a la comunidad GRACE.</em></p> <p>&nbsp;</p> <p>&nbsp;</p> </div> </div> <div class="block block-layout-builder block-field-blocknodevideo-postfield-related-content-video"> <div class="field field--name-field-related-content-video field--type-entity-reference field--label-above"> <div class="field__label">Related Content</div> <div class="field__items"> <div class="field__item"><a href="https://cancergrace.org/post/como-apoyar-tu-pareja-cuidando-al-cuidador-parte-1" hreflang="en">Cómo apoyar a tu pareja - Cuidando al cuidador - Parte 1</a></div> <div class="field__item"><a href="https://cancergrace.org/post/how-support-partner-caring-caregiver" hreflang="und">How to Support a Partner - Caring for the 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block block-views block-views-blockcommunity-foum-block-6"> <h2>Recent Comments</h2> <div><div class="view view-community-foum view-id-community_foum view-display-id-block_6 js-view-dom-id-f987813290e5172bbcd61c935637a434f0e73c804e86827cc238bb3ccbb5794a"> <header class="view-header"> JOIN THE CONVERSATION </header> <div class="view-content"> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forums/general-lungthoracic-cancer/can-lung-cancer-be-asymptomatic" hreflang="en">Can lung cancer be asymptomatic?</a></span></div><div class="views-field views-field-subject"><span class="field-content">Hello Natalieaster, Welcome…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/janinet-grace-community-outreach" typeof="Person" property="schema:name" datatype content="JanineT GRACE Community Outreach">JanineT GRACE …</span> on <time datetime="2025-09-22T14:30:46-07:00" class="datetime">Mon, 09/22/2025 - 14:30</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/another-question-about-tagrisso-not-working-and-alternatives" hreflang="en">another question about Tagrisso not working and alternatives</a></span></div><div class="views-field views-field-subject"><span class="field-content">The information you share is…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/libbierohan" typeof="Person" property="schema:name" datatype>LibbieRohan</span> on <time datetime="2025-09-21T20:55:52-07:00" class="datetime">Sun, 09/21/2025 - 20:55</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/pancoast-tumor-5" hreflang="und">Pancoast Tumor </a></span></div><div class="views-field views-field-subject"><span class="field-content">Hi Mel, I'm sorry for the…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/janinet-grace-community-outreach" typeof="Person" property="schema:name" datatype content="JanineT GRACE Community Outreach">JanineT GRACE …</span> on <time datetime="2025-08-28T11:26:14-07:00" class="datetime">Thu, 08/28/2025 - 11:26</time> </span></div></div> <div class="views-row"><div class="views-field views-field-title"><span class="field-content"><a href="https://cancergrace.org/forum/pancoast-tumor-5" hreflang="und">Pancoast Tumor </a></span></div><div class="views-field views-field-subject"><span class="field-content">Hello.<br> I know this post is…</span></div><div class="views-field views-field-created"><span class="field-content">By <span lang about="https://cancergrace.org/users/mel" typeof="Person" property="schema:name" datatype>mel</span> on <time datetime="2025-08-27T08:20:20-07:00" class="datetime">Wed, 08/27/2025 - 08:20</time> </span></div></div> </div> </div> </div> </div> </div> </div> Fri, 24 Mar 2023 18:44:58 +0000 AlexandraGBeneke 7623 at https://cancergrace.org